My Crazy LifeI've had epilepsy since I was 5 years old. My parents gave me my meds and sent me out with my siblings like there was nothing to worry about. Thinking...Reactions0reactionsComments0 comments
Do You Ever Feel Like a Broken Record ?I was looking for a title for my story such as "Whack-a-Mole Caregiver" or "Parent on Repeat", because when your child or loved one is first diagnosed you can feel...Reactions0reactionsComments0 comments
Don't Be Embarrassed to Talk About Your SeizuresI have been having seizures since i was 13, and now I am 76. I have about one a year. People will talk no matter what, so don't worry about...Reactions0reactionsComments0 comments
Gelastic EpilepsyMy name is Lee Anne. I was born in 1964 in Orange, New Jersey. When I was born I was born with laughing seizures, because I was having gelastic epilepsy...Reactions0reactionsComments0 comments
My First SeizureI experienced my first seizure upon the birth of my first child 55 years ago. I had my seizure when I went into labor & the OBGYN had to give...Reactions0reactionsComments0 comments
Missing an Epilepsy Medication Dose - A Caregiver's PerspectiveThe care you receive from your health care professional (i.e. neurologist), is as unique as you. Your health story may be similar to another person but, no two stories are...Reactions0reactionsComments0 comments
Do Flashing Holiday Light Displays Bother You?It's estimated that only 3-5% of people or persons with epilepsy may have a seizure or other health complications due to flashing lights, strobe lights, pyrotechnics etc., it all depends...Reactions0reactionsComments5 comments
What are Pill Organizers or Blister Packs?Anyone with a chronic illness including epilepsy, or anyone who takes any type of medication at certain times of the day, probably already know it's a challenge on taking the...Reactions0reactionsComments4 comments
Traumatic Brain Injury Caused My EpilepsyMy Name is Timmothy Cronen, and I am lucky enough to be here to explain my story to you all. I was in a horrible car accident in 1997 where...Reactions0reactionsComments3 comments
An Urge for an Ordinary DayBeing the parent to a young adult (23 years old) is tricky. He wants independence, to be like his friends, to not be scared to leave his house for fear...Reactions0reactionsComments0 comments
Understanding Photosensitive EpilepsyYou may wonder why I ask you to help raise awareness when you or your loved one might not have epilepsy, well at one point my daughter Melody didn't either...Reactions0reactionsComments4 comments
Menopause, Epilepsy and Family RelationshipsI’m Michele, from Newcastle upon Tyne, UK. I’m a 62 year old woman, divorced from an abusive alcoholic. I’ve had TLE since I was 11, stress and ovulation are/were my...Reactions0reactionsComments3 comments
I’m 19 and trying to start accepting myselfI had my first seizure when I was 13. I’m 18 now and still have trouble and sometimes feel very embarrassed for having a seizure in front of my friends...Reactions0reactionsComments5 comments
Epilepsy on Father's Day 2020I'm a step father of 3 teens, and a father of twin girls (5yrs old). I was excited all day to get off work and spend the remainder of fathers...Reactions0reactionsComments1 comments
Two Years in Vegas, Two Seizures, One Word: Wow!I left Las Vegas, after spending two years in the Las Vegas Valley, returning to Florida. Within nine months I had my first tonic-clonic seizure. With having no clue how...Reactions0reactionsComments2 comments
Diagnosed at 24Hello community 😊 I had my first tonic clonic seizure in April 2022, I felt like I had been run over by a train, whiplash and my tongue and cheeks...Reactions0reactionsComments1 comments
My Beautiful 12-Year-Old Daughter That Is an Epilepsy WarriorHi, I'm Miyah's mom. She is 12 years old and was diagnosed with generalized tonic clonic seizures and myoclonic absence seizures 3 years ago. Blinking lights and those school lights...Reactions0reactionsComments2 comments
Choosing PositivityI first started having petit mal seizures in 1970 when I had 3 major head injuries in a matter of 3 months. At first they were diagnosed as frontal lobe...Reactions0reactionsComments1 comments
Julie's Epilepsy StoryI got diagnosed with epilepsy when I was 1-and-a-half years old. I am still dealing with seizures and I am almost 36 years old. It has impacted me a lot...Reactions0reactionsComments1 comments
Finally Diagnosed with EpilepsyI was finally diagnosed at the age of 29 after being passed along from doctor to doctor since I was at least 15 years old due to the fact most...Reactions0reactionsComments2 comments