Seven Decades of Life with Epilepsy

At age 3, an accident occurred while on vacation, which marked the beginning of a long journey. Throughout my early years, I experienced heightened sensitivity to emotions, smells, tastes, and fears.

Progression over time

At age 15, seizures began, and it was noted that they seemed to coincide with ovulation and menstruation. This connection between my seizures and hormonal changes became a key part of understanding my condition.

At age 35, I underwent a left temporal lobectomy to remove scar tissue that was contributing to my seizures. Dilantin became my primary medication to reduce the frequency of seizures.

The struggles with memory and tests

During various times, particularly around tests or important events, I struggled with forgetfulness. This often left me feeling uncomfortable or like a failure, as I couldn’t remember things I should have known.

Now at age 76, I still experience occasional seizures and continue to struggle with memory loss. My past feels distant, and sometimes I forget parts of it. Epilepsy is still misunderstood by many, and I often encounter negative views about the condition.

The importance of compassion and support

Throughout the years, I have learned the importance of continuing to offer compassion and support to others who walk this same path. We must never give up, nor give in, despite the challenges we face. Epilepsy may be misunderstood, but we can stand strong and support one another.

What life lessons have you learned from having epilepsy? Share them in the comments!