Stories

Before having epilepsy, my life was okay. I went to work every day, and I could sleep without worrying about having a seizure. Things were pretty normal. But in 2013...

At first, I was only taking medication now and then. Then, I started taking it every time I played football, so I had to give that up 😔. It got...

I started getting seizures in 1956 due to measles, although I was not informed of this until 1979. During the early years, there were only 3 to 4 AEDs available...

Invisible illnesses or disabilities are hard to detect. Not everyone who experiences a seizure falls to the floor and shakes. It’s estimated that there are currently over 40 different types...

My mom, dad, brother, sister, and wife feels pity about taking care of me, but when an attack comes in public, it seems they feels very shameful and awkward. That...

I have had epilepsy for the better part of my life. I had gotten a CDL license, so I looked normal. At work one day a friend of mine said...

I’m 63, divorced, and an ex-Runner Up Businesswoman of the Year in International Trade here in the North East of England. I have two grown-up sons and a loving relationship...

I’m 50 years old and was randomly diagnosed with epilepsy 12 years ago, out of nowhere. The first sign for me was that I would spit for no reason and...

The way of living my life with epilepsy is similar to sailing through turbulent waters, where I notice that each day brings a new set of tests, confrontations with life...

How do you start a conversation? How do you get others to talk about it? Why is epilepsy rarely to never seen in media or awareness commercials? Isn't it time...

I am writing this story on behalf of my wife whom I am "taking care" of. In 2008 she had a suffered a ruptured brain aneurysm and had a craniotomy...

Dear Epilepsy: As a mom of my then 8 year-old daughter, when she was first diagnosed after having a seizure, what made you think it was okay to visit my...

You'd think that when your child or loved one has a family doctor, neurologist, and specialist that they would communicate with each other. I recently learned that's not always the...

I've had epilepsy since I was 5 years old. My parents gave me my meds and sent me out with my siblings like there was nothing to worry about. Thinking...

I was looking for a title for my story such as "Whack-a-Mole Caregiver" or "Parent on Repeat", because when your child or loved one is first diagnosed you can feel...

I have been having seizures since i was 13, and now I am 76. I have about one a year. People will talk no matter what, so don't worry about...

My name is Lee Anne. I was born in 1964 in Orange, New Jersey. When I was born I was born with laughing seizures, because I was having gelastic epilepsy...

I experienced my first seizure upon the birth of my first child 55 years ago. I had my seizure when I went into labor & the OBGYN had to give...

The care you receive from your health care professional (i.e. neurologist), is as unique as you. Your health story may be similar to another person but, no two stories are...

It's estimated that only 3-5% of people or persons with epilepsy may have a seizure or other health complications due to flashing lights, strobe lights, pyrotechnics etc., it all depends...