Stories

My seizure story is triggered by stress and rapid emotions. I was diagnosed at 10 years old and had my first seizure at the beach, nearly drowning underwater. My second...

I had my first seizure when I was 50 years old. I was told it might have been caused by a terrible fall I had, although the neurologist could not...

At age 3, an accident occurred while on vacation, which marked the beginning of a long journey. Throughout my early years, I experienced heightened sensitivity to emotions, smells, tastes, and...

My hero is my 18-year-old daughter. She has endured so much in her 18 years. Her epilepsy started when she was 9 years old, and for a while, it was...

When my daughter was small, she had a seizure that lasted 5 minutes. We rushed her to the ER, and it felt like they didn’t believe me until she had...

I was a child when my brain began to lose memory. I would forget my name at that moment, experiencing this four to five times per day and sometimes less...

Before having epilepsy, my life was okay. I went to work every day, and I could sleep without worrying about having a seizure. Things were pretty normal. But in 2013...

At first, I was only taking medication now and then. Then, I started taking it every time I played football, so I had to give that up 😔. It got...

I started getting seizures in 1956 due to measles, although I was not informed of this until 1979. During the early years, there were only 3 to 4 AEDs available...

Invisible illnesses or disabilities are hard to detect. Not everyone who experiences a seizure falls to the floor and shakes. It’s estimated that there are currently over 40 different types...

My mom, dad, brother, sister, and wife feels pity about taking care of me, but when an attack comes in public, it seems they feels very shameful and awkward. That...

I have had epilepsy for the better part of my life. I had gotten a CDL license, so I looked normal. At work one day a friend of mine said...

I’m 63, divorced, and an ex-Runner Up Businesswoman of the Year in International Trade here in the North East of England. I have two grown-up sons and a loving relationship...

I’m 50 years old and was randomly diagnosed with epilepsy 12 years ago, out of nowhere. The first sign for me was that I would spit for no reason and...

The way of living my life with epilepsy is similar to sailing through turbulent waters, where I notice that each day brings a new set of tests, confrontations with life...

How do you start a conversation? How do you get others to talk about it? Why is epilepsy rarely to never seen in media or awareness commercials? Isn't it time...

I am writing this story on behalf of my wife whom I am "taking care" of. In 2008 she had a suffered a ruptured brain aneurysm and had a craniotomy...

Dear Epilepsy: As a mom of my then 8 year-old daughter, when she was first diagnosed after having a seizure, what made you think it was okay to visit my...

I am a young adult who is mentally and physically disabled. I have many challenges with my daily life. My speech and eating habits have basically made me an outcast...

You'd think that when your child or loved one has a family doctor, neurologist, and specialist that they would communicate with each other. I recently learned that's not always the...