Living with Epilepsy from the Mid 20th CenturyI have had epilepsy now since the mid twentieth century. My first seizure was in 1956 when I was very young. My mother thought I was dying. The following year...reactionscomments
My Seizure StoryMy seizure story is triggered by stress and rapid emotions. I was diagnosed at 10 years old and had my first seizure at the beach, nearly drowning underwater. My second...reactions1comment
First Seizure at 50I had my first seizure when I was 50 years old. I was told it might have been caused by a terrible fall I had, although the neurologist could not...reactions4comments
Seven Decades of Life with EpilepsyAt age 3, an accident occurred while on vacation, which marked the beginning of a long journey. Throughout my early years, I experienced heightened sensitivity to emotions, smells, tastes, and...reactions1comment
My Daughter, My HeroMy hero is my 18-year-old daughter. She has endured so much in her 18 years. Her epilepsy started when she was 9 years old, and for a while, it was...reactionscomments
Believing My Daughter: A Parent's PerspectiveWhen my daughter was small, she had a seizure that lasted 5 minutes. We rushed her to the ER, and it felt like they didn’t believe me until she had...reactionscomments
Unusual ThingsI was a child when my brain began to lose memory. I would forget my name at that moment, experiencing this four to five times per day and sometimes less...reactions2comments
Epilepsy and Me: Living with Epilepsy and Brain Surgery RecoveryBefore having epilepsy, my life was okay. I went to work every day, and I could sleep without worrying about having a seizure. Things were pretty normal. But in 2013...reactions1comment
Since Seizures BeganAt first, I was only taking medication now and then. Then, I started taking it every time I played football, so I had to give that up 😔. It got...reactionscomments
The difference of the 19th to the 20th centuryI started getting seizures in 1956 due to measles, although I was not informed of this until 1979. During the early years, there were only 3 to 4 AEDs available...reactionscomments
Not All Seizures Are Visible - A Caregiver PerspectiveInvisible illnesses or disabilities are hard to detect. Not everyone who experiences a seizure falls to the floor and shakes. It’s estimated that there are currently over 40 different types...reactions4comments
Unwanted PityMy mom, dad, brother, sister, and wife feels pity about taking care of me, but when an attack comes in public, it seems they feels very shameful and awkward. That...reactionscomments
Conversation with a FriendI have had epilepsy for the better part of my life. I had gotten a CDL license, so I looked normal. At work one day a friend of mine said...reactionscomments
My Journey with TLEI’m 63, divorced, and an ex-Runner Up Businesswoman of the Year in International Trade here in the North East of England. I have two grown-up sons and a loving relationship...reactionscomments
Feeling Alone and LostI’m 50 years old and was randomly diagnosed with epilepsy 12 years ago, out of nowhere. The first sign for me was that I would spit for no reason and...reactionscomments
Unpredictable Path: My Life with EpilepsyThe way of living my life with epilepsy is similar to sailing through turbulent waters, where I notice that each day brings a new set of tests, confrontations with life...reactions1comment
Unmasking Epilepsy - Parent PerspectiveHow do you start a conversation? How do you get others to talk about it? Why is epilepsy rarely to never seen in media or awareness commercials? Isn't it time...reactionscomments
Stay AlertI am writing this story on behalf of my wife whom I am "taking care" of. In 2008 she had a suffered a ruptured brain aneurysm and had a craniotomy...reactionscomments
Epilepsy - The Unwelcomed VisitorDear Epilepsy: As a mom of my then 8 year-old daughter, when she was first diagnosed after having a seizure, what made you think it was okay to visit my...reactionscomments
Uncontrolled SeizuresI am a young adult who is mentally and physically disabled. I have many challenges with my daily life. My speech and eating habits have basically made me an outcast...reactionscomments
