Epilepsy and Me: Living with Epilepsy and Brain Surgery RecoveryBefore having epilepsy, my life was okay. I went to work every day, and I could sleep without worrying about having a seizure. Things were pretty normal. But in 2013... By CommunityMemberb6c3972 min readBookmark for laterReactions0reactionsComments1 comments
Since Seizures BeganAt first, I was only taking medication now and then. Then, I started taking it every time I played football, so I had to give that up 😔. It got... By Gordon1 min readBookmark for laterReactions0reactionsComments0 comments
The difference of the 19th to the 20th centuryI started getting seizures in 1956 due to measles, although I was not informed of this until 1979. During the early years, there were only 3 to 4 AEDs available... By cath 52 min readBookmark for laterReactions0reactionsComments0 comments
Not All Seizures Are Visible - A Caregiver PerspectiveInvisible illnesses or disabilities are hard to detect. Not everyone who experiences a seizure falls to the floor and shakes. It’s estimated that there are currently over 40 different types... By Lorrie Forseth1 min readBookmark for laterReactions0reactionsComments4 comments
Unwanted PityMy mom, dad, brother, sister, and wife feels pity about taking care of me, but when an attack comes in public, it seems they feels very shameful and awkward. That... By sanjeev1 min readBookmark for laterReactions0reactionsComments0 comments
Conversation with a FriendI have had epilepsy for the better part of my life. I had gotten a CDL license, so I looked normal. At work one day a friend of mine said... By CommunityMemberf9a6121 min readBookmark for laterReactions0reactionsComments0 comments
My Journey with TLEI’m 63, divorced, and an ex-Runner Up Businesswoman of the Year in International Trade here in the North East of England. I have two grown-up sons and a loving relationship... By Mfinch1 min readBookmark for laterReactions0reactionsComments0 comments
Feeling Alone and LostI’m 50 years old and was randomly diagnosed with epilepsy 12 years ago, out of nowhere. The first sign for me was that I would spit for no reason and... By CommunityMember710c851 min readBookmark for laterReactions0reactionsComments0 comments
Unpredictable Path: My Life with EpilepsyThe way of living my life with epilepsy is similar to sailing through turbulent waters, where I notice that each day brings a new set of tests, confrontations with life... By debangana Banerjee2 min readBookmark for laterReactions0reactionsComments1 comments
Unmasking Epilepsy - Parent PerspectiveHow do you start a conversation? How do you get others to talk about it? Why is epilepsy rarely to never seen in media or awareness commercials? Isn't it time... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
Stay AlertI am writing this story on behalf of my wife whom I am "taking care" of. In 2008 she had a suffered a ruptured brain aneurysm and had a craniotomy... By CommunityMember3f8dc11 min readBookmark for laterReactions0reactionsComments0 comments
Epilepsy - The Unwelcomed VisitorDear Epilepsy: As a mom of my then 8 year-old daughter, when she was first diagnosed after having a seizure, what made you think it was okay to visit my... By Lorrie Forseth1 min readBookmark for laterReactions0reactionsComments0 comments
Healthcare Team Communication - A Parent/Caregiver PerspectiveYou'd think that when your child or loved one has a family doctor, neurologist, and specialist that they would communicate with each other. I recently learned that's not always the... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
My Crazy LifeI've had epilepsy since I was 5 years old. My parents gave me my meds and sent me out with my siblings like there was nothing to worry about. Thinking... By Lily2 min readBookmark for laterReactions0reactionsComments0 comments
Do You Ever Feel Like a Broken Record ?I was looking for a title for my story such as "Whack-a-Mole Caregiver" or "Parent on Repeat", because when your child or loved one is first diagnosed you can feel... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
Don't Be Embarrassed to Talk About Your SeizuresI have been having seizures since i was 13, and now I am 76. I have about one a year. People will talk no matter what, so don't worry about... By CommunityMemberc6e30e1 min readBookmark for laterReactions0reactionsComments0 comments
Gelastic EpilepsyMy name is Lee Anne. I was born in 1964 in Orange, New Jersey. When I was born I was born with laughing seizures, because I was having gelastic epilepsy... By lovable 321 min readBookmark for laterReactions0reactionsComments0 comments
My First SeizureI experienced my first seizure upon the birth of my first child 55 years ago. I had my seizure when I went into labor & the OBGYN had to give... By Dottie55401 min readBookmark for laterReactions0reactionsComments0 comments
Missing an Epilepsy Medication Dose - A Caregiver's PerspectiveThe care you receive from your health care professional (i.e. neurologist), is as unique as you. Your health story may be similar to another person but, no two stories are... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
Do Flashing Holiday Light Displays Bother You?It's estimated that only 3-5% of people or persons with epilepsy may have a seizure or other health complications due to flashing lights, strobe lights, pyrotechnics etc., it all depends... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments5 comments