Seven Decades of Life with EpilepsyAt age 3, an accident occurred while on vacation, which marked the beginning of a long journey. Throughout my early years, I experienced heightened sensitivity to emotions, smells, tastes, and...Reactions0reactionsComments1 comments
My Daughter, My HeroMy hero is my 18-year-old daughter. She has endured so much in her 18 years. Her epilepsy started when she was 9 years old, and for a while, it was...Reactions0reactionsComments0 comments
Believing My Daughter: A Parent's PerspectiveWhen my daughter was small, she had a seizure that lasted 5 minutes. We rushed her to the ER, and it felt like they didn’t believe me until she had...Reactions0reactionsComments0 comments
Unusual ThingsI was a child when my brain began to lose memory. I would forget my name at that moment, experiencing this four to five times per day and sometimes less...Reactions0reactionsComments2 comments
Epilepsy and Me: Living with Epilepsy and Brain Surgery RecoveryBefore having epilepsy, my life was okay. I went to work every day, and I could sleep without worrying about having a seizure. Things were pretty normal. But in 2013...Reactions0reactionsComments1 comments
Since Seizures BeganAt first, I was only taking medication now and then. Then, I started taking it every time I played football, so I had to give that up 😔. It got...Reactions0reactionsComments0 comments
The difference of the 19th to the 20th centuryI started getting seizures in 1956 due to measles, although I was not informed of this until 1979. During the early years, there were only 3 to 4 AEDs available...Reactions0reactionsComments0 comments
Not All Seizures Are Visible - A Caregiver PerspectiveInvisible illnesses or disabilities are hard to detect. Not everyone who experiences a seizure falls to the floor and shakes. It’s estimated that there are currently over 40 different types...Reactions0reactionsComments4 comments
Unwanted PityMy mom, dad, brother, sister, and wife feels pity about taking care of me, but when an attack comes in public, it seems they feels very shameful and awkward. That...Reactions0reactionsComments0 comments
Conversation with a FriendI have had epilepsy for the better part of my life. I had gotten a CDL license, so I looked normal. At work one day a friend of mine said...Reactions0reactionsComments0 comments
My Journey with TLEI’m 63, divorced, and an ex-Runner Up Businesswoman of the Year in International Trade here in the North East of England. I have two grown-up sons and a loving relationship...Reactions0reactionsComments0 comments
Feeling Alone and LostI’m 50 years old and was randomly diagnosed with epilepsy 12 years ago, out of nowhere. The first sign for me was that I would spit for no reason and...Reactions0reactionsComments0 comments
Unpredictable Path: My Life with EpilepsyThe way of living my life with epilepsy is similar to sailing through turbulent waters, where I notice that each day brings a new set of tests, confrontations with life...Reactions0reactionsComments1 comments
Unmasking Epilepsy - Parent PerspectiveHow do you start a conversation? How do you get others to talk about it? Why is epilepsy rarely to never seen in media or awareness commercials? Isn't it time...Reactions0reactionsComments0 comments
Stay AlertI am writing this story on behalf of my wife whom I am "taking care" of. In 2008 she had a suffered a ruptured brain aneurysm and had a craniotomy...Reactions0reactionsComments0 comments
Epilepsy - The Unwelcomed VisitorDear Epilepsy: As a mom of my then 8 year-old daughter, when she was first diagnosed after having a seizure, what made you think it was okay to visit my...Reactions0reactionsComments0 comments
Healthcare Team Communication - A Parent/Caregiver PerspectiveYou'd think that when your child or loved one has a family doctor, neurologist, and specialist that they would communicate with each other. I recently learned that's not always the...Reactions0reactionsComments0 comments
My Crazy LifeI've had epilepsy since I was 5 years old. My parents gave me my meds and sent me out with my siblings like there was nothing to worry about. Thinking...Reactions0reactionsComments0 comments
Do You Ever Feel Like a Broken Record ?I was looking for a title for my story such as "Whack-a-Mole Caregiver" or "Parent on Repeat", because when your child or loved one is first diagnosed you can feel...Reactions0reactionsComments0 comments
Don't Be Embarrassed to Talk About Your SeizuresI have been having seizures since i was 13, and now I am 76. I have about one a year. People will talk no matter what, so don't worry about...Reactions0reactionsComments0 comments