Epilepsy Life: A Caregiver’s POVHi, I’m Lorrie 👋 I recently saw someone post about Autism acceptance — “Autism should be accepted everywhere.” I completely agree. But...reactionscomments
5 Tips to Help You Survive the First YearDoes it feel like everything is spiraling out of control? Are you afraid to even close your eyes? You are not alone...reactionscomments
IDK ... Thoughts on EpilepsyMy story begins well before I was 10. I can remember waking up extremely worn out, having nightmares and always wetting the...reactionscomments
My Seizure StoryMy seizure story is triggered by stress and rapid emotions. I was diagnosed at 10 years old and had my first seizure...reactions2comments
The Never-Ending Story: Part 1Good evening everyone, thank you for whoever created the group. I’ve always wanted to find one that might understand where I’ve been...reactionscomments
The Never-Ending Story: Part 2Continued from Part 1.Around May of 1998 my parents started noticing that I had been having staring spells or random motions (lip...reactionscomments
Do Flashing Holiday Light Displays Bother You?It's estimated that only 3-5% of people or persons with epilepsy may have a seizure or other health complications due to flashing...reactions5comments
Do You Ever Wish?Being a parent and or caregiver to someone with a chronic illness, invisible illness or disability, including epilepsy, is already super busy...reactions2comments
Our Journey with EpilepsyMy name is Heidi and my husband is Dave, we are from the Ohio area. Our story started when one day my...reactionscomments
Living with Epilepsy from the Mid 20th CenturyI have had epilepsy now since the mid twentieth century. My first seizure was in 1956 when I was very young. My...reactions2comments
Menopause, Epilepsy and Family RelationshipsI’m Michele, from Newcastle upon Tyne, UK. I’m a 62 year old woman, divorced from an abusive alcoholic. I’ve had TLE since...reactions3comments
Uncontrolled SeizuresI am a young adult who is mentally and physically disabled. I have many challenges with my daily life. My speech and...reactionscomments
First Seizure at 50I had my first seizure when I was 50 years old. I was told it might have been caused by a terrible...reactions4comments
Believing My Daughter: A Parent's PerspectiveWhen my daughter was small, she had a seizure that lasted 5 minutes. We rushed her to the ER, and it felt...reactionscomments
Seven Decades of Life with EpilepsyAt age 3, an accident occurred while on vacation, which marked the beginning of a long journey. Throughout my early years, I...reactions1comment
My Daughter, My HeroMy hero is my 18-year-old daughter. She has endured so much in her 18 years. Her epilepsy started when she was 9...reactionscomments
Unusual ThingsI was a child when my brain began to lose memory. I would forget my name at that moment, experiencing this four...reactions2comments
Since Seizures BeganAt first, I was only taking medication now and then. Then, I started taking it every time I played football, so I...reactionscomments
Epilepsy and Me: Living with Epilepsy and Brain Surgery RecoveryBefore having epilepsy, my life was okay. I went to work every day, and I could sleep without worrying about having a...reactions1comment
The difference of the 19th to the 20th centuryI started getting seizures in 1956 due to measles, although I was not informed of this until 1979. During the early years...reactionscomments
