Unpredictable Path: My Life with EpilepsyThe way of living my life with epilepsy is similar to sailing through turbulent waters, where I notice that each day brings a new set of tests, confrontations with life... By debangana Banerjee2 min readBookmark for laterReactions0reactionsComments1 comments
Unmasking Epilepsy - Parent PerspectiveHow do you start a conversation? How do you get others to talk about it? Why is epilepsy rarely to never seen in media or awareness commercials? Isn't it time... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
Stay AlertI am writing this story on behalf of my wife whom I am "taking care" of. In 2008 she had a suffered a ruptured brain aneurysm and had a craniotomy... By CommunityMember3f8dc11 min readBookmark for laterReactions0reactionsComments0 comments
Epilepsy - The Unwelcomed VisitorDear Epilepsy: As a mom of my then 8 year-old daughter, when she was first diagnosed after having a seizure, what made you think it was okay to visit my... By Lorrie Forseth1 min readBookmark for laterReactions0reactionsComments0 comments
Healthcare Team Communication - A Parent/Caregiver PerspectiveYou'd think that when your child or loved one has a family doctor, neurologist, and specialist that they would communicate with each other. I recently learned that's not always the... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
My Crazy LifeI've had epilepsy since I was 5 years old. My parents gave me my meds and sent me out with my siblings like there was nothing to worry about. Thinking... By Lily2 min readBookmark for laterReactions0reactionsComments0 comments
Do You Ever Feel Like a Broken Record ?I was looking for a title for my story such as "Whack-a-Mole Caregiver" or "Parent on Repeat", because when your child or loved one is first diagnosed you can feel... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
Don't Be Embarrassed to Talk About Your SeizuresI have been having seizures since i was 13, and now I am 76. I have about one a year. People will talk no matter what, so don't worry about... By CommunityMemberc6e30e1 min readBookmark for laterReactions0reactionsComments0 comments
Gelastic EpilepsyMy name is Lee Anne. I was born in 1964 in Orange, New Jersey. When I was born I was born with laughing seizures, because I was having gelastic epilepsy... By lovable 321 min readBookmark for laterReactions0reactionsComments0 comments
My First SeizureI experienced my first seizure upon the birth of my first child 55 years ago. I had my seizure when I went into labor & the OBGYN had to give... By Dottie55401 min readBookmark for laterReactions0reactionsComments0 comments
Missing an Epilepsy Medication Dose - A Caregiver's PerspectiveThe care you receive from your health care professional (i.e. neurologist), is as unique as you. Your health story may be similar to another person but, no two stories are... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments0 comments
Do Flashing Holiday Light Displays Bother You?It's estimated that only 3-5% of people or persons with epilepsy may have a seizure or other health complications due to flashing lights, strobe lights, pyrotechnics etc., it all depends... By Lorrie Forseth2 min readBookmark for laterReactions0reactionsComments5 comments
What are Pill Organizers or Blister Packs?Anyone with a chronic illness including epilepsy, or anyone who takes any type of medication at certain times of the day, probably already know it's a challenge on taking the... By Lorrie Forseth1 min readBookmark for laterReactions0reactionsComments4 comments
Traumatic Brain Injury Caused My EpilepsyMy Name is Timmothy Cronen, and I am lucky enough to be here to explain my story to you all. I was in a horrible car accident in 1997 where... By CommunityMembere993202 min readBookmark for laterReactions0reactionsComments1 comments
An Urge for an Ordinary DayBeing the parent to a young adult (23 years old) is tricky. He wants independence, to be like his friends, to not be scared to leave his house for fear... By Beckyaw2 min readBookmark for laterReactions0reactionsComments0 comments
Understanding Photosensitive EpilepsyYou may wonder why I ask you to help raise awareness when you or your loved one might not have epilepsy, well at one point my daughter Melody didn't either... By Lorrie Forseth1 min readBookmark for laterReactions0reactionsComments4 comments
Menopause, Epilepsy and Family RelationshipsI’m Michele, from Newcastle upon Tyne, UK. I’m a 62 year old woman, divorced from an abusive alcoholic. I’ve had TLE since I was 11, stress and ovulation are/were my... By Mfinch2 min readBookmark for laterReactions0reactionsComments3 comments
I’m 19 and trying to start accepting myselfI had my first seizure when I was 13. I’m 18 now and still have trouble and sometimes feel very embarrassed for having a seizure in front of my friends... By Fiha1 min readBookmark for laterReactions0reactionsComments5 comments
Epilepsy on Father's Day 2020I'm a step father of 3 teens, and a father of twin girls (5yrs old). I was excited all day to get off work and spend the remainder of fathers... By CommunityMember1afba91 min readBookmark for laterReactions0reactionsComments1 comments
Two Years in Vegas, Two Seizures, One Word: Wow!I left Las Vegas, after spending two years in the Las Vegas Valley, returning to Florida. Within nine months I had my first tonic-clonic seizure. With having no clue how... By Tony1 min readBookmark for laterReactions0reactionsComments2 comments