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Question: What is one thing you wish people knew about Epilepsy?

My answer:
Not everyone who experiences seizures , fall to the floor and shake.

* I'd love to hear your thoughts

#parentperspective Wish

  1. I want people to know that (for me) having a neurologist who is a well informed clinician, is compassionate, is willing to let me be part of my care team, has a good sense of humor, and has time to meet my medical needs are essential to my well-being. I consider myself blessed to have a neurologist who has four of these five characteristics. However, the one characteristic he lacks supports the four he has. Care to guess which one he doesn't have?



    1. That's it!

    2. , I'm sure doctors and neurologists would love to have more time with each patient , to help them with their unique individual health care needs, sadly they just don't , due to scheduling etc .

  2. If you ever had a migraine cocktail they will give/send you into a seizure. It did me. I have epilepsy and PNES!! They ER gave it to me!!

    1. ,
      Omgoodness , how are you doing today , both mentally & physically?

  3. Education and help fund to find a cure.
    So many campaigns to find other disorders, big push for Epilepsy is needed

    1. yes , I totally agree .
      Maybe to fund awareness commercials as well, other causes have them , why not Epilepsy Awareness?

  4. I’ve encountered several people who don’t understand not all seizures are easily controlled.

    Never went a single year without having any.

    1. , more education definitely needed.

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