Tips for an Overwhelmed CaregiverMy son, Matthew, was diagnosed with epilepsy at the age of 6. It took a few months, but we finally achieved seizure freedom with felbamate and the modified Atkins diet... By Kathleen Lear4 min readBookmark for laterReactions 0 reactions Comments0 comments
My 5-Point Strategy to Winning the Epilepsy War"All we have to fear is fear itself," spoken by Franklin Delano Roosevelt, America's commander-in-chief during World War II. Wise words to follow when neurologists diagnose someone with epilepsy. Their... By Tim Ulmer5 min readBookmark for laterReactions 0 reactions Comments0 comments
Supporting Others With Epilepsy as a Peer MentorIn a recent article, I spoke mainly about the benefits of support groups, and I touched on how I'm now my state's Peer Mentor Ambassador. While the official peer mentor... By Renee Williams3 min readBookmark for laterReactions 0 reactions Comments0 comments
Unwanted (and Uninformed) Comments About Your EpilepsyDid a person ever say something insulting, irritating, or ignore what you were saying when it comes to your epilepsy? It has happened to me with a professor in college... By Alyssa D Amico5 min readBookmark for laterReactions 0 reactions Comments0 comments
Preparing for Neurosurgery for EpilepsyNeurosurgery may be a doctor's recommendation after trying multiple medications but seizures are still happening often, particularly if it's more than once per day. A lot of progress has been... By Alyssa D Amico3 min readBookmark for laterReactions 0 reactions Comments2 comments
An Interview With My Boyfriend and How He Copes With My EpilepsyDating with epilepsy can really be hard to maneuver at times. For some people, it can be a dealbreaker, and that's okay. However, if you meet the right person and... By Derra Howard1 min readBookmark for laterReactions 0 reactions Comments2 comments
Self-Care is Seizure PreventionSelf-care is incredibly important for people living with epilepsy, so I want everyone to have as many ideas as possible. Every couple of years I like to make sure that... By Gabrielle Foote5 min readBookmark for laterReactions 0 reactions Comments3 comments
Staying Seizure-Free as a Pregnant Mom with a ToddlerAs we all know, becoming and remaining seizure-free is an extremely high priority in all epileptics' lives. Due to this, I am diligent in following my neurologist's requests for bloodwork... By Gabrielle Foote3 min readBookmark for laterReactions 0 reactions Comments0 comments
Before, During, and After: What My Seizures Feel LikeAre you the parent or caregiver of a person who has epilepsy? Do you wish to understand what it's like to experience epilepsy? Before that, let me introduce myself. I... By Nisshaa Muniandy3 min readBookmark for laterReactions 0 reactions Comments0 comments
Epilepsy, Fear, Jealousy, and AcceptanceThere is no such thing as a "normal" human being. And there are many different types of seizures and circumstances people are in. Seizures can happen once a day, once... By Alyssa D Amico2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Return of My Absence Seizures as an AdultAs a child, I started having seizures. I would have an absence seizure first, then a tonic-clonic seizure afterward. Now, as an adult, I have absence seizures often without the tonic-clonic... By Derra Howard1 min readBookmark for laterReactions 0 reactions Comments4 comments
Does Deep Brain Stimulation Work in Lennox-Gastaut Syndrome?Lennox-Gastaut syndrome (LGS) is a severe type of epilepsy. Seizures usually start before 4 years old. People with LGS have many types of seizures, including tonic seizures, in which muscles... By Editorial Team4 min readBookmark for laterReactions 0 reactions Comments0 comments
Can Dravet Syndrome Affect Facial Features?Dravet syndrome is a rare form of epilepsy that starts in infancy. It is also called severe myoclonic epilepsy of infancy (SMEI). Seizures can be life-threatening and hard to treat... By Editorial Team3 min readBookmark for laterReactions 0 reactions Comments0 comments
Hearing "You Don’t Look Sick" When Living With EpilepsyIt goes like this when you live with an illness like epilepsy: you will deal with, and you spend too much time trying to teach individuals who don't understand your... By Mandi Miller4 min readBookmark for laterReactions 0 reactions Comments8 comments
Seizure Triggers in Dravet SyndromeDravet syndrome is a form of childhood epilepsy that begins in infancy. Older names for Dravet syndrome include polymorphic seizures, polymorphic epilepsy in infancy, or severe myoclonic epilepsy in infancy.1... By Editorial Team3 min readBookmark for laterReactions 0 reactions Comments0 comments
Getting Better Sleep With EpilepsyI would argue that getting plenty of sleep is perhaps the single greatest of all things you can do to control your epilepsy. My greatest improvement in the reduction of... By Tim Ulmer4 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is the Connection Between LGS and Infantile Spasms?Infantile spasms (IS) and Lennox-Gastaut syndrome (LGS) are both seizure disorders that affect children. Researchers have found that 1 in every 3 children that live with IS will one day... By Editorial Team2 min readBookmark for laterReactions 0 reactions Comments0 comments
Womanhood and Epilepsy: I Didn't Get the MemoWhat's the introduction you hear when you "become a woman"? How does it feel? You've become a woman. Realistically speaking, it is the most paramount level of pain, discomfort, and... By Mandi Miller3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Debate About DrivingNothing in my life has been as terrifying as when I didn't know if I'd hit someone with my car during an epileptic seizure and then drove off. Hit and... By Tim Ulmer5 min readBookmark for laterReactions 0 reactions Comments7 comments
Overcoming Epilepsy by Learning How to Fail"I have not failed. I've just found 10,000 ways that won't work," Thomas Edison once said about his quest to invent the light bulb. Good words. The more experiences I... By Tim Ulmer4 min readBookmark for laterReactions 0 reactions Comments0 comments