How My Epilepsy Medication Has Made Me TiredI want to talk about the changes that happen to my body after surgery, especially on epilepsy and the tiredness felt by my body after taking the epilepsy medication. I've... By Nisshaa Muniandy2 min readBookmark for laterReactions0reactionsComments0 comments
Navigating the Prior Authorization MazeWhile intended to ensure appropriate and cost-effective care, prior authorizations often create significant barriers to patients and caregivers. This can impede timely access to necessary medical interventions, like anti-seizure medications... By Caroline Johnson2 min readBookmark for laterReactions0reactionsComments1 comments
Navigating Workplace Challenges: Overcoming Epilepsy StigmaIn today's diverse workplaces, I often face significant challenges due to stigma and discrimination associated with my epilepsy. Overcoming these obstacles requires a concerted effort from both individuals and organizations... By Derra Howard3 min readBookmark for laterReactions0reactionsComments1 comments
Connecting With Others in Our Epilepsy CommunityNavigating life with epilepsy can be intimidating and confusing. It's especially hard without support. Receiving a diagnosis of epilepsy can be overwhelming. You're faced with an overwhelming amount of new... By EpilepsyDisease.com Team2 min readBookmark for laterReactions0reactionsComments0 comments
Navigating a Sudden Change in Healthcare Providers: Tips for a Smooth TransitionFinding the right doctor can be a trying task. I thought I had found the right doctor. So much so, that we came up with a two-year plan to wean... By Derra Howard2 min readBookmark for laterReactions0reactionsComments0 comments
False Evidence Appearing RealA therapist once told me that fear stands for “False Evidence Appearing Real.” I liked this analogy because it helped me feel less anxious about my fears for the future. As a... By Caroline Johnson3 min readBookmark for laterReactions0reactionsComments1 comments
The Twelve Hour CycleIt's 7:00 a.m., and my medication alarm goes off. I get up and walk over to my locked medicine cabinet, taking my lamotrigine and vitamins. Then I go about my... By Gabrielle Foote2 min readBookmark for laterReactions0reactionsComments2 comments
Was That a Nightmare? Frightening Seizures and Postictal StatesYou might assume that getting pulled beneath a highway bridge while walking to school, where a bully shoved a weapon at me, was the scariest experience in my life. The... By Tim Ulmer4 min readBookmark for laterReactions0reactionsComments0 comments
Find Connection: Living with EpilepsyEpilepsy is often misunderstood by those that haven't been impacted by it. That is why our forums have been a safe space for those with the condition to chat about... By EpilepsyDisease.com Team1 min readBookmark for laterReactions0reactionsComments1 comments
With Every Medication Comes a Side EffectA number of years ago, my epileptologist and I were discussing whether Lamictal XR or another drug should be tried. We decided to attempt Lamictal XR, and if it did... By Alyssa D Amico4 min readBookmark for laterReactions0reactionsComments0 comments
Can Too Much Screen Time Cause Seizures?One type of epilepsy, called reflex epilepsy, involves seizures that are triggered by certain sensory events. Triggers often come from the environment, like flashing lights or loud noises. Looking at... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
Empowering the Epileptic Journey: Navigating Work and Transportation ChallengesHey fabulous souls, it's Derra Howard, your guide in the world of style and resilience. Today, let's dive into a topic that's close to my heart – navigating life with... By Derra Howard2 min readBookmark for laterReactions0reactionsComments0 comments
I'm a Mom With Epilepsy – Here Are My TipsMotherhood and epilepsy... Y'all, it has been a wild ride! I have made it more than a year into this world of motherhood, how crazy and exciting it has been. Everyone told... By Elizabeth Savage3 min readBookmark for laterReactions0reactionsComments0 comments
Debilitating Medication Side Effects: Chronic NauseaNavigating the delicate balance between health and medication side effects is an ongoing challenge, one faced daily by many individuals with chronic conditions. In my personal journey with epilepsy, the... By Gabrielle Foote3 min readBookmark for laterReactions0reactionsComments0 comments
Putting On My "I'm Fine" Face With EpilepsyIs it normal to say "I'm fine" when you're clearly not? Or perhaps it's easier than explaining your situation to those around you... I usually stay home instead of hanging... By Nisshaa Muniandy3 min readBookmark for laterReactions0reactionsComments1 comments
Riding Rollercoasters With EpilepsyWhen you're an adventurous child filled with imagination and delight, amusement parks can be some of your best childhood memories. For me, it always started with the excitement that came... By Mandi Miller3 min readBookmark for laterReactions0reactionsComments0 comments
We Had Never Heard of Dravet Syndrome – Until His DiagnosisThe first time I Googled "Dravet syndrome" was the day we got our diagnosis for our son Will – the first time I had ever heard "Druh-vay." The very first... By Kayci Capps3 min readBookmark for laterReactions0reactionsComments0 comments
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate dance between hope and uncertainty. Recently, I made... By Derra Howard2 min readBookmark for laterReactions0reactionsComments0 comments
Trigger Truths: Tell Us About Your Seizure TriggersAre there certain situations that lead to your seizures? We call these seizure triggers. And the truth is, they're different for everyone. Of course, skipping doses of epilepsy meds is... By EpilepsyDisease.com Team1 min readBookmark for laterReactions0reactionsComments0 comments
Swimming With EpilepsyDo you like to swim? I sure do. But even as an adult going for a splash, I know it's important to have someone else present when I'm in the... By Alyssa D Amico4 min readBookmark for laterReactions0reactionsComments1 comments