FeaturedActive yesterdayUnveiling the Truths About Living With EpilepsyWe understand that living with epilepsy can be difficult, so we'd like to create a safe space where you can share what's the hardest about managing epilepsy. Tell us, what...Reactions 0 reactions Comments2 repliesAwarenessCopingMental Health
FeaturedDiagnosisWhen were you diagnosed with epilepsy? Can you share what your diagnosis experience was like...Reactions 0 reactions Comments4 repliesDiagnosis
Active yesterdayTypes of Epilepsy What type of epilepsy were you diagnosed with...Reactions 0 reactions Comments11 repliesDiagnosisTypes of Epilepsy
Active 3 days agoAnyone else tried of losing teeth from grinding them during a seizure or worse biting through your tongue?The pain of it or worse explaining to others why you have missing teeth or can hardly talk after biting through your tongue Ouch...Reactions 0 reactions Comments1 repliesCoping
Active 5 days agoDiagnosed in 2006I was held captive by a man I went to church with for 5 days and have had seizures ever since a TBI I had Gran maul seizures since this...Reactions 0 reactions Comments1 replies
Active 5 days agorestless leg syndromeAlong with Petit Mal, I have R.L.S. Keppra now controls seizures but nothing other than opiates seem to calm my legs. Requip does nothing and Gabapentin puts me to sleep...Reactions 0 reactions Comments1 repliesMedical MarijuanaSeizures
Epilepsy Labels: Is It a Disease, Disorder, or Condition?We understand that names and labels matter! Despite their intent to inform, labels sometimes feel stigmatizing. As part of our effort to support people living with epilepsy and those who...Reactions 0 reactions Comments0 repliesAwarenessCopingMental Health
Survey Closed! Will you take our In America survey and help others understand the true impact of epilepsy?This Survey Is Now Closed. Thank you so much for your interest and participation! Epilepsy is the fourth most common brain disorder in the United States after Alzheimer’s disease, migraine...Reactions 0 reactions Comments0 repliesAwarenessDiagnosisResearch & Clinical Trials
Rare Epilepsies Series: Doose Syndrome (Myoclonic Atonic Epilepsy)Epilepsy is a complex disorder. Our aim is to highlight rare forms of epilepsy in this series. Share with us: Has your child experienced Doose syndrome (myoclonic atonic epilepsy...Reactions 0 reactions Comments0 repliesCaregivingTips & AdviceTypes of Epilepsy
Rare Epilepsies Series: Infantile Spasms (West Syndrome)Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced infantile spasms (West syndrome...Reactions 0 reactions Comments0 repliesAwarenessTips & AdviceTypes of Epilepsy
Rare Epilepsies Series: Lennox-Gastaut SyndromeEpilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Have you or a loved one ever experienced Lennox-Gastaut Syndrome...Reactions 0 reactions Comments0 repliesAwarenessCaregivingTypes of Epilepsy
