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Read conversations, start a discussion, and connect with others about epilepsy.

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

Active yesterday

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

Active yesterday

Rare/Unusual epilepsy?

I have an unusual chronic electric sensation deep in my brain that might be rare type of epilepsy? I have no uncontrol movement/motor issue. This happened after a chemical trauma...

Active 2 days ago

TBI Recovery Time

Hello Everyone, My mother has had a seizure 3 weeks ago out of the blue one morning. I immediately called 911 and she was administered several anti seizure medications along...

Active 3 days ago

Breakthrough Siezures while taking Trileptal

A brief seizure history. I started having seizures in 2005. I then had one 4 months later. A neurologist prescribed depakote which was not effective. I had about 4 grand...

Active 4 days ago

Epilepsy

Help need info Rudi has seizure s for 5 to 10 days a month 5 times a day normally resulting into hospital then stops for 15 to 20 days this...

Active 4 days ago

Does Weather Impact Your Seizures?

Has anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather has been so upside down and outta control...

Active 4 days ago

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

Active 5 days ago

After effects of have a seizure

I used to be 6 years free of having any seizures. Unfortunately in early December of last year I had a grand Mal seizure that went static, I'm not sure...

Active 5 days ago

Coping with AEDs in far off places

How do you cope taking regular AEDs when in a very different time zone? I would so like to travel but have to say no only due to very different...

Active 8 days ago

Seizures with no medical answers

I have been having seizure episodes for a little over 2 years now. Some times they mimic gran mal seizures and other times it will mimic absence seizures. I have...

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