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Read conversations, start a discussion, and connect with others about epilepsy.

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No car

Ugh I had the freedom of coming and going, all of a sudden....poof....no driving. My family made me return the plates of my car. It was a sad day. No...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

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Fear of having seizures in front of family

I started having seizures in university, my then boyfriend helped me deal with most of them. I was so embarrassed to have anyone else witness a seizure. Now we’re not...

Active 3 days ago

Coping

Two years ago I started having seizures and was diagnosed with Epilepsy at the age of 45. Since then I have lost my career, my independence, a lot of my...

Active 3 days ago

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

Active 3 days ago

Types of Epilepsy

What type of epilepsy were you diagnosed with?...

Epilepsy and Menstruation

Ladies, I’ve been living epilepsy for 16 years and I’ve learned we are prone to seizures near or during our monthly cycles. The estrogen gets dumped in our blood and...

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Burdens of having epilepsy

I have been diagnosed with partial complex seizure disorder. The challenges, I have faced is my law enforcement career. I had been a police officer for 35 years. Since was...

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

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