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Read conversations, start a discussion, and connect with others about epilepsy.

Epilepsy commercials on TV?

Why don't we see commercials on TV for either Epilepsy Awareness, raising awareness about SUDEP ( Sudden Unexpected Death in Epilepsy) , why are we not seeing seizure first aid...

How to tell My Epilepsy Story?

Hi Everyone, I'm trying to find out if there's anyone here that can help me put My Epilepsy Story together? With 'My Epileptic Package Deal' 😉 dyslexia can be awful...

TLE Sugery Location (Long, Sorry.)

Try and read this all please, Anybody with experience please chime in. I have TLE and need to get a LITT (laser zap my brain !) procedure done on my...

Frightened to leave

Only recently have I been diagnosed with epilepsy one of my triggers is periods! After 12 seizures in 3 months I’ve finally got a diagnoses but waiting on medication..I’m scared...

Epilepsy after measles

Hi, Has anyone got epilepsy due to having had measles? Nowadays, I realize one can get vaccinated for this condition so it is rare to get it badly as what...

Convulsive seizures in epilepsy

I have had epilepsy since being a teenager at the age of 13. During the year 1984. I am now 55 years-old. My seizures happen in this way where my...

Febrile Seizures

Hi there! I was wondering if adults with epilepsy can have febrile seizures as well? I know they are most common in children. I had a high fever and had...

The changing Times of experiencing epilepsy

For those of you who think that nothing has changed for people with epilepsy I can tell you that you are wrong. When I first started in the 1950s there...

disoriented

I was diagnosed with epilepsy 10 years ago and have 3 seizures since. The last seizure was one where my entire chest felt like it was on fire and afterwards...

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

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