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Read conversations, start a discussion, and connect with others about epilepsy.

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Feelings about having Epilepsy

Hi everyone! I have a question regarding for anyone that would like to answer. I have this friend from high school whose son just got diagnosed with having tonic clonic...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

Does heat triggers seizures?

I just moved from California to Arizona and I’ve been having frequent seizures I’m not stressed , it’s the hot wind,pavement, also it’s hard to make friends I’ve become more...

De ja vu spells with epilepsy

Hi I was diagnosed with epilepsy in 2022 ive had a few sezuires but my main problems is de ja vu spells and when they start they last for days...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

Diagnostic telemetry

Hi everyone, wish me luck for Monday 7th July please. I'm off to hospital for another round of telemetry, 5 days this time instead of the usual 3 and I...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

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