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Read conversations, start a discussion, and connect with others about epilepsy.

God has a sense of humor

Recently I have been diagnosed with Epilepsy, when I say recently, I mean 3 years ago. Let me just put this out there, I am a terrible patient and I...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

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Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

Epilepsy Pamphlet Project Questions

Hi!! My name is Tiera My high school has a required senior project that all seniors have to do in order to graduate. We are allowed to choose our project...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

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