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Read conversations, start a discussion, and connect with others about epilepsy.

Active 5 days ago

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have a seizure, I have nocturnal Epilepsy and have...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

Memory and Mood

I have had epilepsy my entire life. They got much worse within the last couple of years and now I have them basically controlled by anti-seizure medication. I have focal...

Postictal timeline

How long do some people go through recovering from a seizure? It takes me approximately two weeks to get back to myself....

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

God has a sense of humor

Recently I have been diagnosed with Epilepsy, when I say recently, I mean 3 years ago. Let me just put this out there, I am a terrible patient and I...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

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