Active 5 days agoHas epilepsy affected your friendships? Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...Reactions0reactionsComments16 repliesCoping
Active 6 days agoI feel like giving upAfter 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...Reactions0reactionsComments11 repliesCopingSeizuresTips & Advice
FeaturedActive 8 days agoDon't give upI was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...Reactions0reactionsComments11 repliesCopingDiagnosisSeizures
Partial SZ with bradycardiaHey everyone, I have a fairly recent questionable seizure-like activity that started in 2021, and im a 28yr female. It started when I had an intense deja-vu episode while driving...Reactions0reactionsComments1 repliesCopingTypes of EpilepsyTips & Advice
FeaturedSeizure care as someone with epilepsyAs someone with epilepsy, how do you want to be cared for when you have a seizure?...Reactions0reactionsComments12 repliesCopingTips & AdviceMental Health
How do you deal with celebrations and events centered around drinking? As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...Reactions0reactionsComments49 repliesCoping
How has epilepsy impacted your relationship with your family?How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...Reactions0reactionsComments10 repliesIntimacy & RelationshipsCopingCognitive Issues
Stress and anxiety triggering seizures Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...Reactions0reactionsComments40 repliesCopingTips & Advice
Has Your Memory Worsen as You Got Older ? Is a Whiteboard or notebook helping ? As we know, dealing with epilepsy has many effects that can’t be explained. Course, you can't explain it... It would be best if you remembered to do so. Dealing with...Reactions0reactionsComments4 repliesCopingSide EffectsSymptoms
How did you learn that menstrual cycles can impact epilepsy?As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...Reactions0reactionsComments16 repliesIntimacy & RelationshipsMental HealthCoping