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Read conversations, start a discussion, and connect with others about epilepsy.

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What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

Active 4 days ago

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

waking up and having a seizure

god dam. waking up and going straight in to a seizure completely sucks. I have been feeling rough (actually, I feel roughter than usual, I'm even surprised) hope my day...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

Partial SZ with bradycardia

Hey everyone, I have a fairly recent questionable seizure-like activity that started in 2021, and im a 28yr female. It started when I had an intense deja-vu episode while driving...

Gibraltar support

Hi I'm looking for support from someone in Gibraltar who has been diagnosed with epilepsy. Willing to meet up.for coffee and share experiences and advice in what is a completely...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

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