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Read conversations, start a discussion, and connect with others about epilepsy.

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Diagnostic telemetry

Hi everyone, wish me luck for Monday 7th July please. I'm off to hospital for another round of telemetry, 5 days this time instead of the usual 3 and I...

Active 5 days ago

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

Active 7 days ago

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have a seizure, I have nocturnal Epilepsy and have...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

Memory and Mood

I have had epilepsy my entire life. They got much worse within the last couple of years and now I have them basically controlled by anti-seizure medication. I have focal...

Postictal timeline

How long do some people go through recovering from a seizure? It takes me approximately two weeks to get back to myself....

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

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