Breakthrough Siezures while taking Trileptal
A brief seizure history. I started having seizures in 2005. I then had one 4 months later. A neurologist prescribed depakote which was not effective. I had about 4 grand mal and numerous petit mal siezures over the next 1.5 years until i was prescribed trileptal at 1800 mg per day.
I had no more siezures until 1/2/2022. I had one then likely due to missing medication. Then i had one again this morning. I have an appointment to see my neurologist on 10/23/24.
One other note. Before 2018 i was taking (3) 1 mg tabs per day ativan.
In 2018, my new pcp got me off the ativan and got me onto 15 mg lexapro per day.
I have some questions.
Does trileptal become inaffective over time?
My weight has went from 160 to 190 in the last 8 years, should my prescription go up with that?
Is there a replacement for trileptal?
Can dose be raised from 1800 mg per day for a 190 lb. male?
Does prescription lose effectiveness over time?
Is there a good companion prescription to trileptal?
Hi
I wanted to check in to see how you’ve been managing lately? Did your neurologist make any changes to your medications at your last appointment? Sending well wishes, Julie (team member) Thanks! Yes i have an appointment with my neurologist in about a month. I do keep cloraz dipot on hand for a breakthrough siezure.
You're welcome! Ok great! Now I hear really good things about cloraz dipot. I haven't tried it. How does it work for you? Is the recovery time quicker?
Sincerely,
Derra Howard
Epilepsy Team Member
Hi there,
I'm sorry for your breakthrough seizures. I know how hard that can be.
I'm not sure if the Trileptal loses effectiveness over time, but it's possible. However, if you begin to have breakthrough seizures after a long time of being seizure free, definitely speak with your neurologist. For me, when I started to have break through seizures I kept in communication with my healthcare provider. Also, I think its important to keep a seizure journal. You can know what happened that day and what stressed you out.
Here are some links to articles
https://epilepsydisease.com/living/seizure-rescue-medication
https://epilepsydisease.com/living/treatment-journey
Sincerely,
Derra
Epilepsy Team Member
