Burdens of having epilepsy
I have been diagnosed with partial complex seizure disorder. The challenges, I have faced is my law enforcement career. I had been a police officer for 35 years. Since was not medically cleared to carry a firearm. I medically retired earlier then expected.
It has been frustrating knowing that I am not employed. But accepting the changes in my life. I am coping with the change the best way possible. Any suggestions
Next year will make 40 years. I've always had the Gran Mal. I have never had any warning signs. I can be talking to you just hit the floor. When I was younger I took the chance on driving, depending on myself. Since I've gotten older they're more frequent now. I haven't driven 20 years. They've never said why, I've tried to get Disability 2 times denied. I was taken off Medicaid. How, what do? I have years of records. I didn't just make this up yesterday. Some don't realize how hard this is. You have to wait on everything and everybody. I have a 15 year old son.
It’s a daily battle, I won’t sugarcoat it, but finding small wins helps. Some days are harder than others, but having a support system and giving yourself grace to adjust makes a world of difference.
Thank you for the reply, It is hard to deal with the medical condition not knowing what is going to happen the next day and where you will be. But having good support system is a blessing. I depend on my family when it comes to being driven around and being taken for follow-up appointments. Having to go up on medication dosage is another thing which i had to do. It makes you feel like your starting all over and thinking and hoping this will help you with the seizures. We just hope for better things to come.
Hi there!Thank you for sharing your story. First of all, I want to acknowledge the incredible dedication and service you’ve given during your 35-year career as a police officer. It’s understandable that retiring earlier than expected and navigating life changes has been frustrating, but it’s also inspiring to hear how you’re coping and seeking ways to move forward.I can relate to the challenges of living with epilepsy. One way I’ve found purpose is through advocacy and education. Have you ever considered teaching seizure safety to law enforcement? It’s a critical area that often gets overlooked, and your experience in the field combined with your personal journey could make such a difference.For my nonprofit, I’ve trained with officers- on seizure safety, and I’ve seen firsth and how much it’s needed. Officers often encounter situations where recognizing seizures or responding appropriately can save lives. Prevent unnecessary harm and keep he person safe. I also wanted to share these articles :
https://epilepsydisease.com/living/criminal-justice-and-seizures
https://epilepsydisease.com/living/changing-epilepsy-medications
https://epilepsydisease.com/clinical/invisible-burden
Your experience and perspective are so valuable, and I know you have a lot to offer. If there’s any way I can support you or help you explore these ideas further, please let me know!Take care!
Derra Howard
Epilepsy Team MemberI'm epileptic and was a nurse and an ultrasound technician but I don't have any warning signs anymore so I am now on disability. I lost my husband and sold my house. Moved back home to help my parents .Dad passed away last year I made sure that they would take there medication. I can't drive due to my seizures but I have a sister who is living with us she drives me and mom to out to the doctor's etc. If you can't work look into getting disability. It is a very long process. Do you have any friends who are living locally and can help you with transportation? Pay attention to how the medication may effect you. Some of mine make me tired another caused me to go pyco each is different for everyone. I got a notebook and document any seizures that I have along with any body parts moved during the seizure which ones rt or left side. If I have a headache before or after where's it located in my brain I hope this helps if you. If you have any questions please feel free to ask.
