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Read conversations, start a discussion, and connect with others about epilepsy.

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

supportive housing ideas?

hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to keep an eye on me at night. I'm...

Epilepsy at school - a guide for parents and Caregivers

I found this great link I wanted to share , I hope it helps you and your child navigate Epilepsy at school . Information provided by Canada's Paediatricians ⬇️ https://caringforkids.cps.ca/handouts/health-conditions-and-treatments/epilepsy-at-school...

Caregiving for a loved one with epilepsy

As a caregiver, how do you care for a loved one when they have a seizure?...

Managing the Aura Phase

I had a question because I'm prepping a first aid presentation about seizures and a kahoot also. So basically if you have someone (an adult) that's currently in an aura...

Home health aide

My name Lee Anne, My husband Rob and I have been together for 34 years. We met in high school English class. While reading the book of Mice and Men...

Epilepsy commercials on TV?

Why don't we see commercials on TV for either Epilepsy Awareness, raising awareness about SUDEP ( Sudden Unexpected Death in Epilepsy) , why are we not seeing seizure first aid...

Rare Epilepsies Series: Lennox-Gastaut Syndrome

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Have you or a loved one been diagnosed with Lennox-Gastaut Syndrome?...

Rare Epilepsies Series: Dravet Syndrome

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced Dravet syndrome?...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

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