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Read conversations, start a discussion, and connect with others about epilepsy.

Active 4 days ago

Clobazam sent my hair curly like a corkscrew

There seemed to be absolutely no explanation for this whatsoever. Clobazam was added to a number of different medications I was already taking. It was clearly the one that affected...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Life with epilepsy

I have epilepsy since i´m 13, i had no big seizure since i was 18, on my last year of college, i guess was stress, changes, i don´t know, but...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

supportive housing ideas?

hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to keep an eye on me at night. I'm...

Epilepsy at school - a guide for parents and Caregivers

I found this great link I wanted to share , I hope it helps you and your child navigate Epilepsy at school . Information provided by Canada's Paediatricians ⬇️ https://caringforkids.cps.ca/handouts/health-conditions-and-treatments/epilepsy-at-school...

Caregiving for a loved one with epilepsy

As a caregiver, how do you care for a loved one when they have a seizure?...

Managing the Aura Phase

I had a question because I'm prepping a first aid presentation about seizures and a kahoot also. So basically if you have someone (an adult) that's currently in an aura...

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