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Read conversations, start a discussion, and connect with others about epilepsy.

Active 7 days ago

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Clobazam sent my hair curly like a corkscrew

There seemed to be absolutely no explanation for this whatsoever. Clobazam was added to a number of different medications I was already...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always...

Life with epilepsy

I have epilepsy since i´m 13, i had no big seizure since i was 18, on my last year of college, i...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of...

supportive housing ideas?

hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to...

Epilepsy at school - a guide for parents and Caregivers

I found this great link I wanted to share , I hope it helps you and your child navigate Epilepsy at school...

Caregiving for a loved one with epilepsy

As a caregiver, how do you care for a loved one when they have a seizure?...

Managing the Aura Phase

I had a question because I'm prepping a first aid presentation about seizures and a kahoot also. So basically if you have...

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