Active todayDoes Weather Impact Your Seizures?Has anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather has been so upside down and outta control...reactions85repliesAwarenessSeizuresTypes of Epilepsy
Supplements Has anyone with epilepsy taken methylene blue?...reactions1replyCognitive IssuesAwareness
Loneliness isn't just a feeling Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...reactions2repliesCaregivingAwarenessCoping
FeaturedUnveiling the Truths About Living With EpilepsyLiving with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...reactions5repliesMental HealthCopingAwareness
Epilepsy Pamphlet Project QuestionsHi!! My name is Tiera My high school has a required senior project that all seniors have to do in order to graduate. We are allowed to choose our project...reactions2repliesCopingAwarenessNewly Diagnosed
Life with epilepsyI have epilepsy since i´m 13, i had no big seizure since i was 18, on my last year of college, i guess was stress, changes, i don´t know, but...reactions1replySymptomsCaregivingAwareness
How did you or your family handle the harmful psychological assumptions?The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...reactions1replyAwareness
More than epilepsyMy 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...reactions2repliesAwarenessCaregivingCoping
Epilepsy in the MediaWhere do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...reactions3repliesAwareness
Question: What is one thing you wish people knew about Epilepsy? My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...reactions101repliesAwarenessCaregivingHealthcare Team