FeaturedActive todayWill You Take Our 2023 In America Survey?Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...Reactions 0 reactions Comments0 repliesAwarenessDiagnosisResearch & Clinical Trials
FeaturedEpilepsy Awareness Month: I Am More Than My EpilepsyWe will celebrate Epilepsy Awareness Month by honoring each individual's unique journey, recognizing that epilepsy is just a part of one's story, through the theme of: "I am more than...Reactions 0 reactions Comments7 repliesAwarenessCopingTips & Advice
Does Coffee Trigger Epilepsy? Hi guys, Hope you all are doing well! I am actually a sufferer of Photosensitive Epilepsy. This means that lights trigger epileptic seizures in my case. Of course just like...Reactions 0 reactions Comments1 repliesAwarenessSeizuresTips & Advice
My storyI was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...Reactions 0 reactions Comments2 repliesAwarenessCopingDiagnosis
Hello! My Name is AmyAt seventeen years old, I got first grand mal seizure, but I worked through the seizures not knowing what was going on until one of the coworkers saw my seizures...Reactions 0 reactions Comments1 repliesAwarenessDiagnosisSeizures
Epileptic episode in my 70’sIn September 2021 I had an epileptic episode after receiving an infusion for Covid 19. I had no idea what was wrong except was allergic reaction. In January 2022 I...Reactions 0 reactions Comments1 repliesAwareness
A long, long time ago…I started having petite mal seizures at college. Stress, etc. I was finding myself walking around campus then I’d wake up flat on my face. I was diagnosed after about...Reactions 0 reactions Comments1 repliesAwarenessCopingDiagnosis
More than epilepsyMy 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...Reactions 0 reactions Comments2 repliesAwarenessCaregivingCoping
My daughter Back in 2015 my daughter give me a big scare when I got up during the night to use the bathroom and to back to her room at the age...Reactions 0 reactions Comments1 repliesAwarenessCaregivingDiagnosis
The Epilepsy Awareness Month Giveaway*The Epilepsy Giveaway is now closed but, we still welcome community members to share their reasons for not letting epilepsy stop them from living their best lives. Thank you for...Reactions 0 reactions Comments61 repliesAwarenessCoping
