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Read conversations, start a discussion, and connect with others about epilepsy.

Active 5 days ago

Supplements

Has anyone with epilepsy taken methylene blue?...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Featured

Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

Epilepsy Pamphlet Project Questions

Hi!! My name is Tiera My high school has a required senior project that all seniors have to do in order to graduate. We are allowed to choose our project...

Life with epilepsy

I have epilepsy since i´m 13, i had no big seizure since i was 18, on my last year of college, i guess was stress, changes, i don´t know, but...

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Can Epilepsy vary throughout the year?

This is known as Seasonal Epilepsy. As a caregiver to a loved one who fights seizures and the side effects, I had no idea this was a thing . Read...

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