Rare Epilepsies Series: Lennox-Gastaut SyndromeEpilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Have you or a loved one been diagnosed with Lennox-Gastaut Syndrome?...Reactions 0 reactions Comments0 repliesAwarenessCaregivingTypes of Epilepsy
Seizures and WeatherHas anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather has been so upside down and outta control...Reactions 0 reactions Comments4 repliesAwarenessSeizuresTypes of Epilepsy
God's graceThis has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...Reactions 0 reactions Comments2 repliesAwarenessCopingDiagnosis
She has Sparks in her Brain and Love in her HeartI was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...Reactions 0 reactions Comments0 repliesAwarenessCopingDiagnosis
More than epilepsyMy 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...Reactions 0 reactions Comments2 repliesAwarenessCaregivingCoping
Sleeping and wild dreams.Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused them. I’m wondering drugs. I dream all night...Reactions 0 reactions Comments3 repliesAwarenessDiet & Nutrition
How is Everyone Dealing with being Epileptic and Today's Celebration of Cinco de Mayo?As we know, every May 5th is Cinco De Mayo's celebration, the sole day of partying, celebrating, and out-of-this-world fun. As a community, we know that rules and limitations are...Reactions 0 reactions Comments0 repliesAwarenessIntimacy & RelationshipsMental Health
Words of EncouragementThe importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...Reactions 0 reactions Comments0 repliesCopingAwarenessTips & Advice
FeaturedWill You Take Our 2023 In America Survey?Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...Reactions 0 reactions Comments2 repliesAwarenessDiagnosisResearch & Clinical Trials
Research in Epilepsy Hello my name is Harrison and I have epilepsy. I am currently at University of Maryland and I am doing a 4 year research program and I wanted to focus...Reactions 0 reactions Comments1 repliesAwarenessResearch & Clinical Trials