FeaturedDon't give upI was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...Reactions 0 reactions Comments11 repliesCopingDiagnosisSeizures
FeaturedSeizure care as someone with epilepsyAs someone with epilepsy, how do you want to be cared for when you have a seizure?...Reactions 0 reactions Comments10 repliesCopingTips & AdviceMental Health
Active yesterdayTypes of Epilepsy What type of epilepsy were you diagnosed with?...Reactions 0 reactions Comments26 repliesDiagnosisTypes of Epilepsy
Active yesterdayHow do you deal with celebrations and events centered around drinking? As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...Reactions 0 reactions Comments35 repliesCoping
Active yesterdayHow did you learn that menstrual cycles can impact epilepsy?As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...Reactions 0 reactions Comments11 repliesMental HealthCopingIntimacy & Relationships
Active yesterdayDoctors Requesting Unrelated Information - How do You Handle It?When I see a new neurologist I’ve almost always been asked a couple questions like: do I drive, do I operate heavy machinery, etc. I have never been told why...Reactions 0 reactions Comments3 replies
Active 2 days agoDoes Weather Impact Your Seizures?Has anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather has been so upside down and outta control...Reactions 0 reactions Comments25 repliesAwarenessSeizuresTypes of Epilepsy
Active 2 days agoStress and anxiety triggering seizures Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...Reactions 0 reactions Comments24 repliesTips & AdviceCoping
Active 6 days agoRecent tonic clonic, worst one yet.Hi I'm new here and would like to share a bit. I'm a 51 year old male had my first seizure not long before my 50th birthday, was diagnosed with...Reactions 0 reactions Comments1 repliesCopingCognitive Issues
Active 6 days agoHelp! Anyone out there have or know someone with seizures similarMy 9 year old son started having seizures when he was around 5 (that we know of). We have had EEGs MRIs and any and all testing done. They have...Reactions 0 reactions Comments1 repliesDiagnosisSeizuresSymptoms
Active 6 days agoWhat's your seizure journey? In for questionsHi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...Reactions 0 reactions Comments0 repliesDiagnosisSeizuresTypes of Epilepsy
Active 6 days agoSwitching Medication From Epilim to Keppra?Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...Reactions 0 reactions Comments1 repliesSide EffectsTreatmentCognitive Issues