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Read conversations, start a discussion, and connect with others about epilepsy.

What's your seizure journey? In for questions

Hi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...

Seizures when alone.

I have 3 different types of epileptic seizures. -tonic clonic -focal And myoclonic. Many times after a tonic clonic seizure all 3 can happen. I'm on 3 different medications. I...

After the death of my Dad

I was on my way to Italy, at the airport and walking on the plane, I had a physical collapse, then a very bad seizure, my son was with me...

Types of seizures

I had dajavu for the first 40 or so years and never knew. Finally found out and they changed went from conscious to unconscious and peed my pants, had to...

Can words e.g. CBT reduce seizures?

Hi Until last year these "attacks" I'm having were happening roughly once every fortnight - which was just about bearable but had been less frequently previously. Then last year someone...

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

Memory in epilepsy

Hello, I am currently studying for a degree in Psychology at the University Centre at Blackburn College and I am conducting a piece of independent research investigating the impact of...

Doctors Requesting Unrelated Information - How do You Handle It?

When I see a new neurologist I’ve almost always been asked a couple questions like: do I drive, do I operate heavy machinery, etc. I have never been told why...

Recent tonic clonic, worst one yet.

Hi I'm new here and would like to share a bit. I'm a 51 year old male had my first seizure not long before my 50th birthday, was diagnosed with...

Was this a seizure?

Hi, 25, F. It was during the night and I was in the bed with my toddler. It felt like I suddenly woke up, but my eyes were still closed...

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