Active 3 days agoHow do I cope with temporal seizures?Hi, I am f 24 and I am new to epilepsy. This will be a long post so please bare with me. :) 10 months ago I started having some...Reactions 0 reactions Comments0 repliesSeizuresSymptomsTips & Advice
FeaturedCaring for Someone With Epilepsy: Seizure CareAs a caregiver, how do you care for a loved one when they have a seizure?...Reactions 0 reactions Comments4 repliesCopingSeizuresTips & Advice
Rare Epilepsies Series: Dravet SyndromeEpilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced Dravet syndrome?...Reactions 0 reactions Comments0 repliesCaregivingTips & AdviceTypes of Epilepsy
Recent issue with insurance Hi everyone, little backround info first. I’m 28 I’ve had epilepsy since I was born. As a child I had petit mal seizures and as I got older those stopped...Reactions 0 reactions Comments1 repliesCopingInsurance & DisabilityTips & Advice
16 year old with seizure like activityMy 16 year old daughter gets extreme nausea then about 2-3 minutes later has seizure like activity…eyes rolling back in her head, stiff legs and arms and her hands draw...Reactions 0 reactions Comments1 repliesDiagnosisSeizuresTips & Advice
I feel like giving upAfter 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...Reactions 0 reactions Comments8 repliesCopingSeizuresTips & Advice
Sleep with Epilepsy Good morning. When I wake up, I feel overwhelmed if I think too much such as thinking of all the things I have to do in the day and whenever...Reactions 0 reactions Comments0 repliesCognitive IssuesSleep Tips & Advice
How do you guys recover from a seizure ? is it rest? being productive ?Well, last Saturday, I had a seizure. After 4-6 months of being episode free, I was celebrating just a little bit; I've been working to stay alive, having a balance...Reactions 0 reactions Comments3 repliesCopingSide EffectsTips & Advice
What are the best glasses for photosensitive epilepsy?My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...Reactions 0 reactions Comments1 repliesTips & Advice
FeaturedSeizure care as someone with epilepsyAs someone with epilepsy, how do you want to be cared for when you have a seizure?...Reactions 0 reactions Comments8 repliesCopingMental HealthTips & Advice