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Active 3 days ago

Juvenile absence epilepsy

Hello. My son was diagnosed early 2024 with JAE, he is on lamotrigine twice daily and has managed it well. With brief absence seizures weekly. Few days ago he had...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...

The best smart watch to alert a carer to a tonic clonic seizure

My 13 year old boy was recently diagnosed with Juvenile Myclonic Epilepsy has a tonic clonic seizure every few months and lots of long absence seizures daily. He's at a...

Has anyone ever tried deep brain stimulation to treat their epilepsy?

How did it go and has it improved your life?...

How do I cope with temporal seizures?

Hi, I am f 24 and I am new to epilepsy. This will be a long post so please bare with me. :) 10 months ago I started having some...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

Fear of having seizures in front of family

I started having seizures in university, my then boyfriend helped me deal with most of them. I was so embarrassed to have anyone else witness a seizure. Now we’re not...

Looking for answers

Hello everyone my name is Drew and I am 38 years old as have had tonic clonic seizures since I was 7 and got them under control at 12 with...

First time seizure

Hi there So i’m a first year college student and I had my first grand mal seizure a few days ago. It was pretty bad, I was shaking really violently...

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