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Read conversations, start a discussion, and connect with others about epilepsy.

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

Supplements

Has anyone with epilepsy taken methylene blue?...

Having Seizures With Banging my head against the wall and yelingx543

Hello i started having small jerks i do not remember what happen after that i assume from seizures then i woke up i guess ( i do not remember what...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

EPILEPSY BRAIN

I never knew epilepsy meant anything besides someone who shook with seizures… never knew of diff type of seizures never heard of memory loss…. Boy oh boy a year and...

Does anyone experience brain zaps?

I stopped taking my epilepsy tablets for a few years. Besides the occasional “aura”, I didn’t experience any seizures or symptoms - that is, until recently. I’ve been extremely tired...

Keppra long term use

Anyone who has suffered from cogntive problems after long term Keppra use? Reading, thinking, speaking. Anything like that?...

Switching Medication From Epilim to Keppra?

Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...

Recent tonic clonic, worst one yet.

Hi I'm new here and would like to share a bit. I'm a 51 year old male had my first seizure not long before my 50th birthday, was diagnosed with...

Switching meds

So after a year of kepra I’m switching to trileptal. The only issue I had was random mood swings and occasional outbursts of crying. I had 6 days ago my...

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