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Read conversations, start a discussion, and connect with others about epilepsy.

Cingulate gyrus epilepsy (right frontal lobe)

I'm looking to hear from someone who's been diagnosed with cingulate gyrus epilepsy In the right frontal lobe. (Focal seizures) Everything I've researched shows it is very hard to diagnose...

How I've Lived With Epilepsy All My Life

I had my first seizure at 5 days old. They used forceps to pull me out of my mother. The scare tissue on my brain caused me to have seizures...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's really messed up logic- especially when it's something...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features like seizure tracking, alerts, or any other functionalities...

Juvenile Myoclonic Epilepsy

Hi my daughter was diagnosed with JME. She had about one or two grand mal seizures a year. This year she has had a spike been on Levetiracetam 1500 twice...

Switching Medication From Epilim to Keppra?

Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...

Work and epilepsy

My partner had a seizure and had a 6 month driving ban. It is not confirmed epilepsy as he is having tests. His work have called tests over 3 days...

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...

I have epilepsy but I can drive

I am a Driver no problem me Driving time...

Advocacy all groups

In person or online. Autism spectrum mental health interlerlectual disabilities lgbtq spinal cord injury...

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