Becoming frustrated about what might be triggering my seizures.I have had Epilepsy since I was 11 - now 64. Over this period of time I have figured out most of the triggers for my seizures but sometimes when...Reactions 0 reactions Comments1 repliesTips & Advice
My storyI was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...Reactions 0 reactions Comments2 repliesAwarenessCopingDiagnosis
MedicationI have found the only medication that works is Trokendi XR and I am on Medicare and my prescription program covers it but it’s $978 for 30 pills and I...Reactions 0 reactions Comments7 repliesCost
Epileptic episode in my 70’sIn September 2021 I had an epileptic episode after receiving an infusion for Covid 19. I had no idea what was wrong except was allergic reaction. In January 2022 I...Reactions 0 reactions Comments1 repliesAwareness
A long, long time ago…I started having petite mal seizures at college. Stress, etc. I was finding myself walking around campus then I’d wake up flat on my face. I was diagnosed after about...Reactions 0 reactions Comments1 repliesAwarenessCopingDiagnosis
My daughter Back in 2015 my daughter give me a big scare when I got up during the night to use the bathroom and to back to her room at the age...Reactions 0 reactions Comments1 repliesAwarenessCaregivingDiagnosis
my storyHi there I’m 38 years old and was diagnosed with epilepsy last July during the toughest period off my life dealing with the death off both my grandparents in less...Reactions 0 reactions Comments1 replies
My grandsons epilepsy journeyHi my name is Jennifer. I am raising my 1 yr old grandson Erik. Erik has been diagnosed with infantile spasms and epilepsy. Erik is on 2 types of medications...Reactions 0 reactions Comments1 replies
The Epilepsy Awareness Month Giveaway*The Epilepsy Giveaway is now closed but, we still welcome community members to share their reasons for not letting epilepsy stop them from living their best lives. Thank you for...Reactions 0 reactions Comments61 repliesAwarenessCoping
Epilepsy warriorI was diagnosed with epilepsy by the time I was in 1st grade with petite mal seizures and also with grand mal seizures. I don't let it hold me back!...Reactions 0 reactions Comments1 repliesCopingDiagnosisSeizures