Forums

Read conversations, start a discussion, and connect with others about epilepsy.

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Grandparents Looking for Help - Doose Syndrome

Our grandson (age 5) was just diagnosed with Doose Syndrome. His parents have been with him through 85 days of testing. As...

Active today

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

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Nocturnal seizures

Hi has anyone else had these and none whilst awake ?...

Active yesterday

Do you know what triggers your seizures?

This forum was part of our 2025 Giveaway, which is now closed. We welcome our community members to continue discussing seizure triggers...

Active 6 days ago

Invisible Parts of Epilepsy

What’s the most exhausting part of living with epilepsy (or supporting someone who does) that people don’t see? Share your experience with...

Explaining Epilepsy to Others

Do you ever get frustrated with having to explain epilepsy to other people? What is the most commonly misunderstood piece of information...

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No car

Ugh I had the freedom of coming and going, all of a sudden....poof....no driving. My family made me return the plates of...

STD application process

Hi- I'm looking for some help. on 4/19 this year I had a major work injury, heavy box fell on my head...

Does Weather Impact Your Seizures?

Has anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a...

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