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Read conversations, start a discussion, and connect with others about epilepsy.

Looking for answers

Hello everyone my name is Drew and I am 38 years old as have had tonic clonic seizures since I was 7 and got them under control at 12 with...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features like seizure tracking, alerts, or any other functionalities...

Has Your Memory Worsen as You Got Older ? Is a Whiteboard or notebook helping ?

As we know, dealing with epilepsy has many effects that can’t be explained. Course, you can't explain it... It would be best if you remembered to do so. Dealing with...

How do I cope with temporal seizures?

Hi, I am f 24 and I am new to epilepsy. This will be a long post so please bare with me. :) 10 months ago I started having some...

Help! Anyone out there have or know someone with seizures similar

My 9 year old son started having seizures when he was around 5 (that we know of). We have had EEGs MRIs and any and all testing done. They have...

Brain Zaps

I was shot in the head and subsequently developed a seizure disorder. I stopped taking my keppra 7 years ago. I had what felt like a buzzing, electromagnetic pulse wave...

Split Second Blackouts

Hi, I have photosensitive juvenile myoclonic epilepsy. I have had it for 7 years and this entire time I have been struggling with split-second blackouts. They happen multiple times a...

Anyone else get these weird feelings?

Newly diagnosed as had 5 seizures over 5 months. Two landed me in hospital with a tongue bitten to shreds and broken cheekbone. CT and bloods clear, just waiting on...

Is it epilepsy?

Hi, I don't know if it is a right community to reach out to, so sorry in advance. Almost every day when I lay down and think about my day...

Confused

Hi…I’m new here. I’m diagnosed with intractable epilepsy by MRI and symptoms. Lately my seizures have been getting worse. I am aware for all of them no matter which type...

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