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Read conversations, start a discussion, and connect with others about epilepsy.

Controlling seizures

Hi all, I’m new to this forum and recently diagnosed with epilepsy (April this year). I’m currently on 250g a day of lamotrigine. I went 9 weeks without a seizure...

Types of seizure

I heard, there are some different types of seizures depending on the diagnosis, duration and frequency. So far, I couldn’t pinpoint my problem even though I did some tests. The...

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side...

Medication and Treatment Preferences

What type of treatment do you primarily use to manage your epilepsy? Options: Medication Ketogenic diet Vagus nerve stimulation (VNS) CBD/Medical cannabis Surgery Other Have you experienced significant side effects...

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Has anyone ever tried deep brain stimulation to treat their epilepsy?

How did it go and has it improved your life?...

Left temporal lobe epilepsy medications

If anyone here has left temporal lobe epilepsy and has had success with medications that have stopped your seizures please let us know which medications you’re taking. Thanks!...

Switching Medication From Epilim to Keppra?

Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...

Lamotrigine and urine color

Has anyone noticed a difference in their urine color that might be related to lamotrigine? Is this a known side effect of the medication? Thanks!...

Seizures when alone.

I have 3 different types of epileptic seizures. -tonic clonic -focal And myoclonic. Many times after a tonic clonic seizure all 3 can happen. I'm on 3 different medications. I...

Has anyone used a Nuface Device?

Nuface is micro current technology which lifts the facial muscles. Has anyone with epilepsy ever had any experience with one?...

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