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Read conversations, start a discussion, and connect with others about epilepsy.

Becoming frustrated about what might be triggering my seizures.

I have had Epilepsy since I was 11 - now 64. Over this period of time I have figured out most of the triggers for my seizures but sometimes when...

My story

I was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...

Medication

I have found the only medication that works is Trokendi XR and I am on Medicare and my prescription program covers it but it’s $978 for 30 pills and I...

Epileptic episode in my 70’s

In September 2021 I had an epileptic episode after receiving an infusion for Covid 19. I had no idea what was wrong except was allergic reaction. In January 2022 I...

A long, long time ago…

I started having petite mal seizures at college. Stress, etc. I was finding myself walking around campus then I’d wake up flat on my face. I was diagnosed after about...

My daughter

Back in 2015 my daughter give me a big scare when I got up during the night to use the bathroom and to back to her room at the age...

my story

Hi there I’m 38 years old and was diagnosed with epilepsy last July during the toughest period off my life dealing with the death off both my grandparents in less...

My grandsons epilepsy journey

Hi my name is Jennifer. I am raising my 1 yr old grandson Erik. Erik has been diagnosed with infantile spasms and epilepsy. Erik is on 2 types of medications...

The Epilepsy Awareness Month Giveaway

*The Epilepsy Giveaway is now closed but, we still welcome community members to share their reasons for not letting epilepsy stop them from living their best lives. Thank you for...

Epilepsy warrior

I was diagnosed with epilepsy by the time I was in 1st grade with petite mal seizures and also with grand mal seizures. I don't let it hold me back!...

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