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Read conversations, start a discussion, and connect with others about epilepsy.

How has Epilepsy impacted you?

Has anyone ever thought life was over? Epilepsy isnt who you are, but it still impacts us everyday....

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

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Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

Symptoms after nocturnal seizure

Hi All, 47, F. I've had nocturnal seizures for a couple of years now and they're mostly manageable with medication. I live on my own, so it's sometimes hard to...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's really messed up logic- especially when it's something...

Mental Health and Physical Health: the link between mental and physical health

The interaction between mental and physical health is intense and complex,hence it needs a comprehensive outlook rather than a proper conversation that will lead to wellness and ultimately it will...

Is it epilepsy?

Hi, I don't know if it is a right community to reach out to, so sorry in advance. Almost every day when I lay down and think about my day...

Epilepsy Labels: Is It a Disease, Disorder, or Condition?

We understand that names and labels matter! Despite their intent to inform, labels sometimes feel stigmatizing. As part of our effort to support people living with epilepsy and those who...

Coping

How do you cope with epilepsy?...

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