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Read conversations, start a discussion, and connect with others about epilepsy.

Split Second Blackouts

Hi, I have photosensitive juvenile myoclonic epilepsy. I have had it for 7 years and this entire time I have been struggling with split-second blackouts. They happen multiple times a...

Epilepsy at 70

First and only Gran Mal Seizure happened the day BEFORE my 70th B-D . Ever since , I have NEVER been hungry , EVER ... Anybody else ? Only the...

Recent issue with insurance

Hi everyone, little backround info first. I’m 28 I’ve had epilepsy since I was born. As a child I had petit mal seizures and as I got older those stopped...

16 year old with seizure like activity

My 16 year old daughter gets extreme nausea then about 2-3 minutes later has seizure like activity…eyes rolling back in her head, stiff legs and arms and her hands draw...

Stable with meds on a daily basis except when menstrual cycle is starting

Epilepsy medicine seems to keep her stable on a daily basis. Except when her menstrual cycle is starting. Then she is prone to small seizures. Can anyone provide some feedback...

Mental health

I have been suffering from right temporal lobe seizures since the age of 7yr. Does anyone know if there are any long term effects of taking anti-seizure meds. I have...

Reaction to Epilepsy

Dear Liddie, I have had epilepsy since I was 6.5 years old. In Ohio and PA-Nursing School Directors turned me down when I applied to their nursing school-they took my...

Sleep with Epilepsy

Good morning. When I wake up, I feel overwhelmed if I think too much such as thinking of all the things I have to do in the day and whenever...

Tonic clonic seizure after effects

Hi my partner has recently had a tonic clonic seizure which was quite severe requiring hospital admissions. This was two days ago and he is now experiencing a strange sensation...

I’m new to the forum

Being new I guess I’m going to figure out how all this works. My seizures began in March 2021 within 2 weeks of getting my first Covid vaccine, yes I...

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