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Read conversations, start a discussion, and connect with others about epilepsy.

Having epilepsy and being deaf

Hi, I am deaf. I have epilepsy. Often that's not easy for me. When I was 2 years old, I became deaf, fever sick and had epilepsy. That was rough!...

My epilepsy journey

My name is Kelsey Dollar. I had my first seizure when I was 16 months old on Christmas Day 1995. I was diagnosed with epilepsy at the age of 8...

Epileptic since I was born

I am almost 19 years old and I have been epileptic my whole life, but I got diagnosed with eye fluttering seizures when I was about 12-13yo. I have had...

Hello! My Name is Diana Berg

Diagnosed when I was 9 started out with just seizures in my sleep when I got older I got the grand mal ones even though I seizures I have 2...

I am more than my epilepsy

I had a stroke and my first 2 seizures when I was 17, days away from turning 18. This happened on thanksgiving morning back in 2010 at about 2:30a.m. and...

My story isn't over

I have been epilepsy warrior since I was 6 months old. The last time I have had a seizure has been since May 2022 had multiple seizures. I have been...

It’s hard

I was diagnosed with epilepsy at the age of 14. I had to get birth control when I got diagnosed. In addition, my headache got so bad, I never feel...

Everyday is a better day!

I was born with epilepsy when I was a few weeks old, it went away for 9 years came back the summer of 2010 and had 2 brain surgeries one...

Rare Epilepsies Series: Infantile Spasms (West Syndrome)

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced infantile spasms (West syndrome)?...

Confused

Hi…I’m new here. I’m diagnosed with intractable epilepsy by MRI and symptoms. Lately my seizures have been getting worse. I am aware for all of them no matter which type...

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