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Read conversations, start a discussion, and connect with others about epilepsy.

Active 4 days ago

Types of Epilepsy

What type of epilepsy were you diagnosed with?...

Active 4 days ago

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

Active 7 days ago

EEG In hospital for one week

Has anyone tried EEG in hospital, For a week to locate exactly where your seizures Are located, and what medicines to take, with less side effects?...

Active 7 days ago

Psilocybin and Epilepsy

**Initial disclaimer** This topic is not meant to support or encourage the intake or abuse of illicit substances. Always consult your medical provider and adhere to local or federal laws...

Active 8 days ago

Diagnosed

I was diagnosed when I was 2 yrs old. Mom noticed me sitting on the steps instead of going up them. Asked why I had stopped I said my foot...

Clobazam sent my hair curly like a corkscrew

There seemed to be absolutely no explanation for this whatsoever. Clobazam was added to a number of different medications I was already taking. It was clearly the one that affected...

Featured

Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

Juvenile absence epilepsy

Hello. My son was diagnosed early 2024 with JAE, he is on lamotrigine twice daily and has managed it well. With brief absence seizures weekly. Few days ago he had...

Seizures with no medical answers

I have been having seizure episodes for a little over 2 years now. Some times they mimic gran mal seizures and other times it will mimic absence seizures. I have...

Diagnostic telemetry

Hi everyone, wish me luck for Monday 7th July please. I'm off to hospital for another round of telemetry, 5 days this time instead of the usual 3 and I...

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