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Read conversations, start a discussion, and connect with others about epilepsy.

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Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

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Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have a seizure, I have nocturnal Epilepsy and have...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

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Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...

How has epilepsy impacted your mental health?

May is Mental Health Awareness Month. And we know that one of epilepsy’s most common complications is issues with mental health. 💜 Tell us: 🧠 How has epilepsy impacted your...

6-Year-Old Possibly Has Panayiotopoulos Syndrome – Neurologist Suggested Keppra, Unsure Whether to Start

Hi everyone, I’m looking for advice and shared experiences from parents or clinicians. I have a 6-year-old son who recently had a nighttime seizure, and we’ve been told it might...

How has Epilepsy impacted you?

Has anyone ever thought life was over? Epilepsy isnt who you are, but it still impacts us everyday....

How are you doing, really?

It's okay to be "fine," but it also okay to be having a hard day, not feeling well, or having an amazing day and feeling great! No matter how you...

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...

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