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Read conversations, start a discussion, and connect with others about epilepsy.

Changing medication

Hi I have recently changed medication from tegretol to lamotrigine. I have been on tegretol for 20 years. I have been fine for the 17 weeks of coming off the...

Driving with Epilepsy

Hi, my name is Cameron and I was thinking of getting my unrestricted driver's license. But here's the issue, I am 18, and have had epilepsy (Traumatic Brain Injury) since...

Coming out of a tonic clonic seizure

Good morning- I’ve been thinking about the postictal state we experience after a seizure. I remember my first seizure being extremely terrifying because I “came to” with paramedics and at...

Types of Epilepsy

What type of epilepsy were you diagnosed with?...

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side...

De ja vu spells with epilepsy

Hi I was diagnosed with epilepsy in 2022 ive had a few sezuires but my main problems is de ja vu spells and when they start they last for days...

Epilim sodium Valporate and pregnancy

Hi I recently had a epileptic fit and ended up shattering my shoulder and having surgery carried out. When I was in hospital they kept saying I need to see...

Could it be a 'small' seizure?

Hiya, I hope this doesn't sound too silly! I was diagnosed with epilepsy 12 years ago - i only have tonic clonic seizures, no aura or warning - they're managed...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Summer with Epilepsy

Which aspect of summer most impacts your epilepsy management?...

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