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Read conversations, start a discussion, and connect with others about epilepsy.

Symptoms after nocturnal seizure

Hi All, 47, F. I've had nocturnal seizures for a couple of years now and they're mostly manageable with medication. I live on my own, so it's sometimes hard to...

feeling of iv contras and dizziness before blacking out

Hello, I am just wondering if anyone else has had symptoms like this? I also get really sweaty and my hands and feet lock up. Also if you know what...

EEG In hospital for one week

Has anyone tried EEG in hospital, For a week to locate exactly where your seizures Are located, and what medicines to take, with less side effects?...

Coping

Two years ago I started having seizures and was diagnosed with Epilepsy at the age of 45. Since then I have lost my career, my independence, a lot of my...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...

Equal Opportunity Policy is nonsense

I had a seizure in someone's house when assessing them for being a prospective Adopter. I had given them the information about what to do if I had a seizure...

Types of Epilepsy

What type of epilepsy were you diagnosed with?...

Epilepsy and Menstruation

Ladies, I’ve been living epilepsy for 16 years and I’ve learned we are prone to seizures near or during our monthly cycles. The estrogen gets dumped in our blood and...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

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