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Read conversations, start a discussion, and connect with others about epilepsy.

Psilocybin and Epilepsy

**Initial disclaimer** This topic is not meant to support or encourage the intake or abuse of illicit substances. Always consult your medical provider and adhere to local or federal laws...

Diagnosed

I was diagnosed when I was 2 yrs old. Mom noticed me sitting on the steps instead of going up them. Asked why I had stopped I said my foot...

Clobazam sent my hair curly like a corkscrew

There seemed to be absolutely no explanation for this whatsoever. Clobazam was added to a number of different medications I was already taking. It was clearly the one that affected...

Featured

Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

Juvenile absence epilepsy

Hello. My son was diagnosed early 2024 with JAE, he is on lamotrigine twice daily and has managed it well. With brief absence seizures weekly. Few days ago he had...

Diagnostic telemetry

Hi everyone, wish me luck for Monday 7th July please. I'm off to hospital for another round of telemetry, 5 days this time instead of the usual 3 and I...

Fever-Triggered Epilepsy

Do you have fever-triggered epilepsy? What do you do to overcome it?...

Neurologist

I have this neurologist and she is rubbish 5 years ago she overdose me with topimate to the point where I had 5 seizures in a row. I then found...

Fear after a seizure

I had a seizure and when I got into the house I felt this fear that something has happend like someone murdered someone or someone is in this house. I...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

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