caret icon Back to all discussions

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges.

Has epilepsy affected your friendships? Has your condition made it hard to make or keep friends?

Tell us about your experiences, and any advice you may have for finding true, supportive friends. 💜

  1. Yes it has but one man showed me that the friends who backed out on me were not my friends and he has been a life long friend since we were kids and never backed off on me one time for my seizures and always helped me out with anything I needed and that showed me who a real friend is

    1. I feel alone and I want friends with seizures

      1. we understand feeling alone. I hope you find community within our site. While I know it is not the same as in person, we’re always here to listen and support you💙. Have you ever looked into support groups in your area? Sending positive thoughts and well wishes, Julie (team member)

    2. After Iraq a kid and just few years of seizures my wife left me. :-/ Then my mother moves down, I get brain surgery, try other meds, and start to become seizure free (for the most part. Went from multiple a day to 1 randomly godknowing). Luckily I still have my best friend from 30 yrs ago. 😀 ,my son, and as sad as it is my mom, lol.

      1. I hate being called an 'epileptic' or that I 'suffer from seizures'. These are both such negative labels. People with cancer are not called 'cancerous'. They have cancer. Epilepsy is something I have, not something that I am.

        1. We agree! Such a big difference. Do you correct folks when they say either of those things, or do you let it go? Warmly, Corene (team member)

      Please read our rules before posting.