,
I completely understand and validate your feelings. It's essential to remember that your husband has chosen to support you willingly. I've had to remind myself of this at times as well. While it may be challenging, always remember that you are not a burden to him; you are his partner.
I can relate to how epilepsy can impact friendships significantly. If it's an option for you, consider hosting game nights like I did. I prepared fun mocktails and even had a couple of beers available for the night. This allowed my friends to see that I'm still the same person, albeit with some limitations on what I can do. I also openly communicated with them, saying something like, "Hey, my brain might be a bit foggy today, but don't worry. Just know that I might make game night a bit more interesting." This approach helped me feel less embarrassed and put my friends at ease. They understood that they didn't need to "save me" if I forgot something or took a bit longer to remember things.
Always remember, you are not alone.
Warmest regards,
Gabrielle F (Epilepsy Moderator)