Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about epilepsy.

Active today

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side...

Symptoms after nocturnal seizure

Hi All, 47, F. I've had nocturnal seizures for a couple of years now and they're mostly manageable with medication. I live on my own, so it's sometimes hard to...

Lamictal

I have been taking Lamictal for nearly 20 years without any problems but I have recently started to experience side effects that I think might be related to taking Lamictal...

Blood Pressure

Has anyone else experienced a rise im blood pressure since getting off medication? I was on levetiracetam (keppra) for several years, but since getting off I have developed high blood...

Keppra long term use

Anyone who has suffered from cogntive problems after long term Keppra use? Reading, thinking, speaking. Anything like that?...

SUDEP Fear in Epilepsy

A person living with epilepsy may experience serious complications, and the fear of those complications is legitimate and real. We would like to ask the community: Do you fear SUDEP...

Long term side effects of Keppra

I, a 22 yr old female have been taking Levetiracetam (generic Keppra) 500mg -2 times daily for around 6 years. Before that I was on Phenytoin (Dilantin) 100mg -3 times...

Medication and Treatment Preferences

What type of treatment do you primarily use to manage your epilepsy? Options: Medication Ketogenic diet Vagus nerve stimulation (VNS) CBD/Medical cannabis Surgery Other Have you experienced significant side effects...

Switching Medication From Epilim to Keppra?

Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...

Lamotrigine and urine color

Has anyone noticed a difference in their urine color that might be related to lamotrigine? Is this a known side effect of the medication? Thanks!...

Categories

Select a category to find topics that interest you.