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Read conversations, start a discussion, and connect with others about epilepsy.

Equal Opportunity Policy is nonsense

I had a seizure in someone's house when assessing them for being a prospective Adopter. I had given them the information about what to do if I had a seizure...

Epilepsy and Menstruation

Ladies, I’ve been living epilepsy for 16 years and I’ve learned we are prone to seizures near or during our monthly cycles. The estrogen gets dumped in our blood and...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Burdens of having epilepsy

I have been diagnosed with partial complex seizure disorder. The challenges, I have faced is my law enforcement career. I had been a police officer for 35 years. Since was...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Looking for exchange. My strange relation to music and sound.

I got a single attack when I was 13/14 around. When I was 33, in 2021, I started to get tonic-clonic seizure and absence. Been in treatment for about 3...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Breakthrough Siezures while taking Trileptal

A brief seizure history. I started having seizures in 2005. I then had one 4 months later. A neurologist prescribed depakote which was not effective. I had about 4 grand...

TBI Recovery Time

Hello Everyone, My mother has had a seizure 3 weeks ago out of the blue one morning. I immediately called 911 and she was administered several anti seizure medications along...

Eyelid fluttering

Hi everyone! I was diagnosed with Juvenile Myoclonic Epilepsy 10 years ago and have been on 200mg of Lamictal twice a day since then. Last year, I started having really...

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