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Living with epilepsy

Living with epilepsy can be challenging. How do you deal with epilepsy? Tell us about your experience.

  1. I try to find a dr who will respect me, and not judge me. My last Dr I tried to accept me as a patient told me “it’s not my problem” as I told him about my epilepsy, and frequent seizures, and laughed as he said this, then he called the police on me when I got upset, and displayed my reaction to his comments!

    1. , this is a fantastic point and thank you so much for sharing this with the community. Finding the right care team is critical to receive adequate care! I am very happy to hear that you're advocating for yourself. Have you found the right doctor? Wishing you all the best.
      Warmly, Kailah, Epilepsy Team Member

    2. Yes finding the right doctor is very important I appreciate and respect your thoughts and what you have been going through. Be patient keep calm and find an understanding doctor to treat your condition also view my bio hope you will be very fine soon. Always be positive and trust the process. Takecare

  2. I try to get lots of rest. I try incredibly hard not to get stressed, that I'd a big trigger for me.
    I also stay away from grocery stores, those lights are awful.

    1. , good for you! Lots of rest is very important as well as identifying your triggers and staying away from them as much as possible. Wishing you all the best. Warmly, Kailah H (Epilepsy Team Member)

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