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Read conversations, start a discussion, and connect with others about epilepsy.

Symptoms

Does anyone feel extremely dizzy and shakey when they get up from a sitting position and then can't walk a straight line?...

Sleeping and wild dreams.

Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused them. I’m wondering drugs. I dream all night...

Coming off my meds

Hi there, I wondered if anyone on here has been successful coming off their medication? I have been seizure free for 16 years and my EEG was normal. I am...

Keppra long term use

Anyone who has suffered from cogntive problems after long term Keppra use? Reading, thinking, speaking. Anything like that?...

Strange triggers

Does anyone have anything strange or specific that triggers their seizures? I’ve had tonic clonic seizures in my sleep but not for around 6 years. I’m medicated and only suffer...

How many experience physical abuse when having a seizure while hospitalized.

Every time I am admitted to the hospital for a seizure (or I have a seizure while hospitalized) I am physically abused by hospital staff security who has been called...

Advice Please

Hi, I am very upset to report that yesterday I had what appeared to be a seizure whilst out walking my dog. Cant remember anything but waking up in an...

Controlling seizures

Hi all, I’m new to this forum and recently diagnosed with epilepsy (April this year). I’m currently on 250g a day of lamotrigine. I went 9 weeks without a seizure...

Gibraltar support

Hi I'm looking for support from someone in Gibraltar who has been diagnosed with epilepsy. Willing to meet up.for coffee and share experiences and advice in what is a completely...

SUDEP Fear in Epilepsy

A person living with epilepsy may experience serious complications, and the fear of those complications is legitimate and real. We would like to ask the community: Do you fear SUDEP...

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