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Read conversations, start a discussion, and connect with others about epilepsy.

Hello! My Name is Diana Berg

Diagnosed when I was 9 started out with just seizures in my sleep when I got older I got the grand mal ones even though I seizures I have 2...

I am more than my epilepsy

I had a stroke and my first 2 seizures when I was 17, days away from turning 18. This happened on thanksgiving morning back in 2010 at about 2:30a.m. and...

My story isn't over

I have been epilepsy warrior since I was 6 months old. The last time I have had a seizure has been since May 2022 had multiple seizures. I have been...

It’s hard

I was diagnosed with epilepsy at the age of 14. I had to get birth control when I got diagnosed. In addition, my headache got so bad, I never feel...

Everyday is a better day!

I was born with epilepsy when I was a few weeks old, it went away for 9 years came back the summer of 2010 and had 2 brain surgeries one...

Rare Epilepsies Series: Infantile Spasms (West Syndrome)

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced infantile spasms (West syndrome)?...

Confused

Hi…I’m new here. I’m diagnosed with intractable epilepsy by MRI and symptoms. Lately my seizures have been getting worse. I am aware for all of them no matter which type...

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Diagnosis

We understand that living with epilepsy can be difficult, so we'd like to create a safe space where you can share what's the hardest about managing epilepsy. Tell us, when...

Featured

Living with epilepsy

Living with epilepsy can be challenging. How do you deal with epilepsy? Tell us about your experience....

People who have epilepsy AND have an abnormal EEG, did the AED meds make your EEG normal?

People who have been diagnosed with epilepsy and whose EEG shows SWD discharges, did those discharges go away when you were put on meds? Was your EEG clean? And did...

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