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Read conversations, start a discussion, and connect with others about epilepsy.

Active 3 days ago

Memory and Mood

I have had epilepsy my entire life. They got much worse within the last couple of years and now I have them basically controlled by anti-seizure medication. I have focal...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

Partial complex seizures and driving

I am 30 years old I've been living with absence and partial complex seizures for 20 of those years. I think they are under control with lamictal however I don't...

Designing websites for epilepsy

Hi, my name is Lily Martin. I am a graduate student in the GIT program at Arizona State University. For my research topic for my class, GIT 500, I am...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

Controlling seizures

Hi all, I’m new to this forum and recently diagnosed with epilepsy (April this year). I’m currently on 250g a day of lamotrigine. I went 9 weeks without a seizure...

Gibraltar support

Hi I'm looking for support from someone in Gibraltar who has been diagnosed with epilepsy. Willing to meet up.for coffee and share experiences and advice in what is a completely...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

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