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Read conversations, start a discussion, and connect with others about epilepsy.

Does anyone experience brain zaps?

I stopped taking my epilepsy tablets for a few years. Besides the occasional “aura”, I didn’t experience any seizures or symptoms - that is, until recently. I’ve been extremely tired...

Keppra long term use

Anyone who has suffered from cogntive problems after long term Keppra use? Reading, thinking, speaking. Anything like that?...

EPILEPSY BRAIN

I never knew epilepsy meant anything besides someone who shook with seizures… never knew of diff type of seizures never heard of memory loss…. Boy oh boy a year and...

Switching Medication From Epilim to Keppra?

Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Recent tonic clonic, worst one yet.

Hi I'm new here and would like to share a bit. I'm a 51 year old male had my first seizure not long before my 50th birthday, was diagnosed with...

Switching meds

So after a year of kepra I’m switching to trileptal. The only issue I had was random mood swings and occasional outbursts of crying. I had 6 days ago my...

Home health aide

My name Lee Anne, My husband Rob and I have been together for 34 years. We met in high school English class. While reading the book of Mice and Men...

Gelastic Epilepsy

I read were you named some seizures that are less know. Like the laughing seizures. Yes, you are correct. Gelastic Epilepsy (laughing seizures) are rare. I know because I was...

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

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