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Forums

Read conversations, start a discussion, and connect with others about epilepsy.

Neurologist

I have this neurologist and she is rubbish 5 years ago she overdose me with topimate to the point where I had...

Fear after a seizure

I had a seizure and when I got into the house I felt this fear that something has happend like someone murdered...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a...

Seizure with convulsions but conscience?

Hello, I’m a 30 year old female with a 15 year history with epilepsy. I’ve had many different types of seizures over...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always...

Age 5 epilepsy - carbamazepine not working?

Hi , just after some experiences / advice on what to expect. My daughter who’s 5 has had epilepsy since she was...

Can Lithium medication cause seizures

I was put on 1000mg Lithium medication for Bipolar Affective Disorder and I had a tonic clinic seizure on my way to...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have...

6-Year-Old Possibly Has Panayiotopoulos Syndrome – Neurologist Suggested Keppra, Unsure Whether to Start

Hi everyone, I’m looking for advice and shared experiences from parents or clinicians. I have a 6-year-old son who recently had a...

How has Epilepsy impacted you?

Has anyone ever thought life was over? Epilepsy isnt who you are, but it still impacts us everyday....

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