Symptoms after nocturnal seizure
Hi All, 47, F.
I've had nocturnal seizures for a couple of years now and they're mostly manageable with medication. I live on my own, so it's sometimes hard to know I've had a seizure except for the after effects like waking up confused with short term memory loss of the days and weeks before, brain fog and muscle stiffness (oh, and a raw tongue). Recently I've had two rather severe seizures and I wanted to ask: does anyone else get a waking after effect of video clips (too short to ID) playing in your head on repeat for a few days after the seizure? No usable memory of the days before, but these random clips flashing by?
Hi Belinda, I'm in a similar situation as you - I'm 48, but Male, and had nocturnal seizures only (9 of them in total) occurred over the last 18 years. It was considered to be from a head injury in 2001. Anyway.... I don't believe I have anything like you describe after my seizures, over the next few days. Although, as expected, things are a little hazy. I'm absolutely gutted, as this week (48 hours ago) I had my 10th ever seizure, however, it was at 3pm while I was working at my desk, fully awake. It has slightly freaked me out, as I've never experience a preceding 'Aura' of any kind (usually fast asleep). But this time I knew something was going wrong, so I was able to shout to my wife in the next room, who was able to come watch over me while I entered the seizure part. Apart from being a bit sore still, I am feeling pretty low to be honest. Will need to hand my drivers licence in for 12 months, which as a family man with teenage kids, it hurts. Happy to talk to you more, if you ever want to chat to someone else in a similar (but I appreciate not identical) position to you. It's important to realise that we are not 'alone' in this (although sometimes it really feels like you are!). All the best, Matt
Hi
I wanted to follow up on your post and see how you are doing? Has your doctor been able to help you with your symptoms? I really hope you are feeling better. Jill (Team Member) Yes, same situation. I empathize deeply.
