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Read conversations, start a discussion, and connect with others about epilepsy.

Types of seizure

I heard, there are some different types of seizures depending on the diagnosis, duration and frequency. So far, I couldn’t pinpoint my problem even though I did some tests. The...

Looking for answers

Hello everyone my name is Drew and I am 38 years old as have had tonic clonic seizures since I was 7 and got them under control at 12 with...

First time seizure

Hi there So i’m a first year college student and I had my first grand mal seizure a few days ago. It was pretty bad, I was shaking really violently...

waking up and having a seizure

god dam. waking up and going straight in to a seizure completely sucks. I have been feeling rough (actually, I feel roughter than usual, I'm even surprised) hope my day...

Prolific US author advocating putting things in person's mouth having a seizure!

Reading 'My Sister's Keeper' by Jodi Picoult who it's said does masses of research... to find her characters advocating putting things in the mouth of a person having a grand...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features like seizure tracking, alerts, or any other functionalities...

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...

supportive housing ideas?

hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to keep an eye on me at night. I'm...

What's your seizure journey? In for questions

Hi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...

Seizures when alone.

I have 3 different types of epileptic seizures. -tonic clonic -focal And myoclonic. Many times after a tonic clonic seizure all 3 can happen. I'm on 3 different medications. I...

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