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Read conversations, start a discussion, and connect with others about epilepsy.

Psilocybin and Epilepsy

**Initial disclaimer** This topic is not meant to support or encourage the intake or abuse of illicit substances. Always consult your medical provider and adhere to local or federal laws...

Anyone else get these weird feelings?

Newly diagnosed as had 5 seizures over 5 months. Two landed me in hospital with a tongue bitten to shreds and broken cheekbone. CT and bloods clear, just waiting on...

Photosensitive epilepsy/medicated resistant epilepsy

I have had seizures since I was 12 and I am now 60. I have never been controlled and still fall a lot. After some research I notice my trigger...

Epilepsy and Bipolar

On 03/14/23 while driving I had a very bad seizure take over me, friends I was completely in another world I had no sight no hearing no voice But Thanks...

Tbi

Hi community! I never had seizures as a kid but in my late forties I started having them at work I thought it was stressed related but now fifty I...

Words of Encouragement

The importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...

ethosuximide

Dear all, I’m Jody Meschiari, I write from Italy. My son Elia (six years old) is affected by focal epilepsy discovered five months ago. In September my wife saw Elia...

New onset seizures

Hello everyone, I am 27 years old and have had 2 “seizure” type events over the past 2 weeks. I’m looking for some reassurance as it feels as though the...

Will You Take Our 2023 In America Survey?

Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...

Research in Epilepsy

Hello my name is Harrison and I have epilepsy. I am currently at University of Maryland and I am doing a 4 year research program and I wanted to focus...

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