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Read conversations, start a discussion, and connect with others about epilepsy.

Finding the Right Neurologist

I wanted to see if anyone else has issues with finding the right Neurologist. I have been looking for a neurologist who has bedside manner and cares about my journey...

Diagnosis

How many seizures do I need before they diagnose its epilepsy? I had 1 in May the 3 in succession in August. On Topiramato 150mg soon to be 200mg....

Partial SZ with bradycardia

Hey everyone, I have a fairly recent questionable seizure-like activity that started in 2021, and im a 28yr female. It started when I had an intense deja-vu episode while driving...

My child (7 years old) refuses to take the medication.

She was given Levetiracetam 100/ml solution. It has a bitter taste and every effort to have her take the med has failed. We even put it in a sweet flavored...

Prolific US author advocating putting things in person's mouth having a seizure!

Reading 'My Sister's Keeper' by Jodi Picoult who it's said does masses of research... to find her characters advocating putting things in the mouth of a person having a grand...

Cingulate gyrus epilepsy (right frontal lobe)

I'm looking to hear from someone who's been diagnosed with cingulate gyrus epilepsy In the right frontal lobe. (Focal seizures) Everything I've researched shows it is very hard to diagnose...

How I've Lived With Epilepsy All My Life

I had my first seizure at 5 days old. They used forceps to pull me out of my mother. The scare tissue on my brain caused me to have seizures...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's really messed up logic- especially when it's something...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features like seizure tracking, alerts, or any other functionalities...

Juvenile Myoclonic Epilepsy

Hi my daughter was diagnosed with JME. She had about one or two grand mal seizures a year. This year she has had a spike been on Levetiracetam 1500 twice...

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