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Read conversations, start a discussion, and connect with others about epilepsy.

She has Sparks in her Brain and Love in her Heart

I was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Tbi and epilepsy…

Anyone have tbi and develop epilepsy after? Where you feel like you become someone else. You think you’re crazy all the time and you think you’re seizures are all in...

Welcoming my 40's with epilepsy

I started all of this, out of nowhere, at the age of about 39. My first doctor told me, after a night of 7 terrible seizures, that it was all...

Tbi

Hi community! I never had seizures as a kid but in my late forties I started having them at work I thought it was stressed related but now fifty I...

Words of Encouragement

The importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...

Thoughts on Epilepsy and dating

What are ways you guys maintain an active dating life while your seizures are active?...

Cognitive ability

I have had seizures for approximately 50 years now. I also have severe memory loss. I don't remember anything long term or recent memory. In fact, I rely on family...

Featured

Epilepsy Awareness Month: I Am More Than My Epilepsy

We will celebrate Epilepsy Awareness Month by honoring each individual's unique journey, recognizing that epilepsy is just a part of one's story, through the theme of: "I am more than...

My story

I was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...

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