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Read conversations, start a discussion, and connect with others about epilepsy.

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Words of Encouragement

The importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...

Will You Take Our 2023 In America Survey?

Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...

Research in Epilepsy

Hello my name is Harrison and I have epilepsy. I am currently at University of Maryland and I am doing a 4 year research program and I wanted to focus...

Featured

Epilepsy Awareness Month: I Am More Than My Epilepsy

We will celebrate Epilepsy Awareness Month by honoring each individual's unique journey, recognizing that epilepsy is just a part of one's story, through the theme of: "I am more than...

Does Coffee Trigger Epilepsy?

Hi guys, Hope you all are doing well! I am actually a sufferer of Photosensitive Epilepsy. This means that lights trigger epileptic seizures in my case. Of course just like...

My story

I was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...

Epileptic episode in my 70’s

In September 2021 I had an epileptic episode after receiving an infusion for Covid 19. I had no idea what was wrong except was allergic reaction. In January 2022 I...

A long, long time ago…

I started having petite mal seizures at college. Stress, etc. I was finding myself walking around campus then I’d wake up flat on my face. I was diagnosed after about...

My daughter

Back in 2015 my daughter give me a big scare when I got up during the night to use the bathroom and to back to her room at the age...

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