Do flashing lights displays in malls, stores, and events bother you during the holidays season? Has anyone else noticed a increase in flashing blinking lights on tv shows etc? How do you navigate , holiday light displays in malls , at events if you are...Reactions0reactionsComments0 repliesAwareness
Epilepsy commercials on TV?Why don't we see commercials on TV for either Epilepsy Awareness, raising awareness about SUDEP ( Sudden Unexpected Death in Epilepsy) , why are we not seeing seizure first aid...Reactions0reactionsComments3 repliesAwarenessCaregiving
Frightened to leaveOnly recently have I been diagnosed with epilepsy one of my triggers is periods! After 12 seizures in 3 months I’ve finally got a diagnoses but waiting on medication..I’m scared...Reactions0reactionsComments2 repliesAwarenessDiagnosis
Rare Epilepsies Series: Lennox-Gastaut SyndromeEpilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Have you or a loved one been diagnosed with Lennox-Gastaut Syndrome?...Reactions0reactionsComments0 repliesAwarenessCaregivingTypes of Epilepsy
God's graceThis has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...Reactions0reactionsComments2 repliesAwarenessCopingDiagnosis
She has Sparks in her Brain and Love in her HeartI was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...Reactions0reactionsComments0 repliesAwarenessCopingDiagnosis
Words of EncouragementThe importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...Reactions0reactionsComments0 repliesTips & AdviceAwarenessCoping
Will You Take Our 2023 In America Survey?Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...Reactions0reactionsComments2 repliesAwarenessDiagnosisResearch & Clinical Trials
Research in Epilepsy Hello my name is Harrison and I have epilepsy. I am currently at University of Maryland and I am doing a 4 year research program and I wanted to focus...Reactions0reactionsComments1 repliesResearch & Clinical TrialsAwareness
FeaturedEpilepsy Awareness Month: I Am More Than My EpilepsyWe will celebrate Epilepsy Awareness Month by honoring each individual's unique journey, recognizing that epilepsy is just a part of one's story, through the theme of: "I am more than...Reactions0reactionsComments7 repliesAwarenessTips & AdviceCoping