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Read conversations, start a discussion, and connect with others about epilepsy.

Do I have epilepsy or just a seizure disorder?

Hello. I've had seizures ranging from grand mal to absent for over 15 years and on medication for them. My discussion/question is, I've only ever had them within 2-3 hours...

Welcoming my 40's with epilepsy

I started all of this, out of nowhere, at the age of about 39. My first doctor told me, after a night of 7 terrible seizures, that it was all...

Will You Take Our 2023 In America Survey?

Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...

My story

I was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...

A long, long time ago…

I started having petite mal seizures at college. Stress, etc. I was finding myself walking around campus then I’d wake up flat on my face. I was diagnosed after about...

My daughter

Back in 2015 my daughter give me a big scare when I got up during the night to use the bathroom and to back to her room at the age...

Epilepsy warrior

I was diagnosed with epilepsy by the time I was in 1st grade with petite mal seizures and also with grand mal seizures. I don't let it hold me back!...

My epilepsy journey

My name is Kelsey Dollar. I had my first seizure when I was 16 months old on Christmas Day 1995. I was diagnosed with epilepsy at the age of 8...

Epileptic since I was born

I am almost 19 years old and I have been epileptic my whole life, but I got diagnosed with eye fluttering seizures when I was about 12-13yo. I have had...

Hello! My Name is Diana Berg

Diagnosed when I was 9 started out with just seizures in my sleep when I got older I got the grand mal ones even though I seizures I have 2...

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