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Read conversations, start a discussion, and connect with others about epilepsy.

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Can Epilepsy vary throughout the year?

This is known as Seasonal Epilepsy. As a caregiver to a loved one who fights seizures and the side effects, I had no idea this was a thing . Read...

Does anyone experience brain zaps?

I stopped taking my epilepsy tablets for a few years. Besides the occasional “aura”, I didn’t experience any seizures or symptoms - that is, until recently. I’ve been extremely tired...

Sleeping and wild dreams.

Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused them. I’m wondering drugs. I dream all night...

SUDEP Fear in Epilepsy

A person living with epilepsy may experience serious complications, and the fear of those complications is legitimate and real. We would like to ask the community: Do you fear SUDEP...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's really messed up logic- especially when it's something...

I have epilepsy but I can drive

I am a Driver no problem me Driving time...

Epilepsy at school - a guide for parents and Caregivers

I found this great link I wanted to share , I hope it helps you and your child navigate Epilepsy at school . Information provided by Canada's Paediatricians ⬇️ https://caringforkids.cps.ca/handouts/health-conditions-and-treatments/epilepsy-at-school...

Did you know : March 1st is the official start of Epilepsy Awareness Month in Canada!

Did you know : March 1st is the official start of Epilepsy Awareness Month in Canada . Please consider checking out these websites to see events all year around, also...

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