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Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging...

Life with epilepsy

I have epilepsy since i´m 13, i had no big seizure since i was 18, on my last year of college, i...

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Can Epilepsy vary throughout the year?

This is known as Seasonal Epilepsy. As a caregiver to a loved one who fights seizures and the side effects, I had...

Does anyone experience brain zaps?

I stopped taking my epilepsy tablets for a few years. Besides the occasional “aura”, I didn’t experience any seizures or symptoms -...

Sleeping and wild dreams.

Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused...

SUDEP Fear in Epilepsy

A person living with epilepsy may experience serious complications, and the fear of those complications is legitimate and real. We would like...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's...

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