Choosing the Best Epilepsy Doctor for YouAre you looking for an epileptologist? Or are you not satisfied with the neurologist you are seeing? What kind of attitude are you looking for in your doctor? A doctor...Reactions0reactionsComments0 comments
From Pink to Purple Ribbons, We Need ActionNovember is designated as Epilepsy Awareness Month. After just finishing up advocacy during Breast Cancer Awareness Month, I am a bit fatigued. I am a stage III breast cancer survivor and...Reactions0reactionsComments0 comments
An Urge for an Ordinary DayBeing the parent to a young adult (23 years old) is tricky. He wants independence, to be like his friends, to not be scared to leave his house for fear...Reactions0reactionsComments0 comments
How Can I Support a Friend or Family Member With Epilepsy This November?November is Epilepsy Awareness Month, and if you know someone living with epilepsy, this article will give you some practical ways to support a friend or family member living with...Reactions0reactionsComments1 comments
Resilience: A Defining Theme of EpilepsyI am always learning, relearning, applying, and reapplying what I learn. When you're living with epilepsy, this is a must! With November being Epilepsy Awareness Month, I've been reflecting on...Reactions0reactionsComments0 comments
Understanding Photosensitive EpilepsyYou may wonder why I ask you to help raise awareness when you or your loved one might not have epilepsy, well at one point my daughter Melody didn't either...Reactions0reactionsComments4 comments
Treating Epilepsy: Risks, Side Effects, But Still No CureLiving with epilepsy can be unpredictable and challenging. When I've explained my medical journey to those who ask – when speaking about my medication or viewing my surgery scars –...Reactions0reactionsComments2 comments
Menopause, Epilepsy and Family RelationshipsI’m Michele, from Newcastle upon Tyne, UK. I’m a 62 year old woman, divorced from an abusive alcoholic. I’ve had TLE since I was 11, stress and ovulation are/were my...Reactions0reactionsComments3 comments
Working Through My Fears of SUDEPOne of the many uncertainties of epilepsy that always lingers in the back of my mind is the fear of sudden unexpected death in epilepsy (SUDEP). This unexpected possibility brings...Reactions0reactionsComments0 comments
Achieving My Dreams While Living With EpilepsyA new friend of mine who doesn't have epilepsy but reads my columns replied, "Boy, you've really done a lot of things with epilepsy!" He went further and said that...Reactions0reactionsComments0 comments
Spreading Epilepsy Awareness in "Non-Epilepsy" SpacesFor this year's Essence Festival of the Culture, I was able to have my first vendor booth for my epilepsy nonprofit, the Saving Grace Epilepsy Foundation. The Essence Festival is...Reactions0reactionsComments0 comments
Myths About Epilepsy vs. Facts About EpilepsyOver the years, I've learned that advocating for epilepsy is crucial to finding a cure. When I was younger, I didn't realize there were so many misconceptions about seizure disorders...Reactions0reactionsComments3 comments
Marijuana to Treat Epilepsy?Do you really want to be put on Charlotte's Web (cannabidiol/CBD), Epidiolex, or medical marijuana and wonder if a doctor with more expertise in epilepsy/seizures might not recommend it? I...Reactions0reactionsComments2 comments
"I'm Having a Seizure and I Need My Rescue Medication."Her eyes told me something wasn't right. The student approached the media center check-out desk in a quiet panic. "Can you call the school nurse?" she asked. My gut instinct...Reactions0reactionsComments3 comments
Getting Family Support: Do They Understand Your Epilepsy?Frequently, colleagues at my support group (and plenty of complaints in social media groups I watch) assure me that I'm not alone about getting inadequate support from my family. If a...Reactions0reactionsComments0 comments
What About Memory? Oh Yeah, I Forgot.Can epilepsy affect memory? People with epilepsy may experience memory difficulties, which can be caused by seizures, medication, temporal lobe damage, or other impacts of the condition. Epilepsy can impact...Reactions0reactionsComments2 comments
Epilepsy in Childhood: My Personal ExperienceHave you ever wondered what it's like to be a child who doesn't know anything about needles, hospitals, or even getting sick? A child who doesn't know how the body...Reactions0reactionsComments0 comments
I Was Just Diagnosed With Epilepsy... Now What?So, you have been diagnosed with epilepsy... What are your next steps? When a new diagnosis hits, you will have everyone and their brother trying to offer you advice, information...Reactions0reactionsComments1 comments
Depression, Anxiety, and Insomnia: Recovering From a Horrible SeizureWhen you get really sick, the dynamic around you will change. Your won't be the same. The whole vibe within your home or your community or even yourself – it...Reactions0reactionsComments0 comments
Comfort in Having a Rescue Medication in Our Seizure Plan of CareNow that our son, who is developmentally delayed and non-verbal, is in school full-time and considered an adult at age 18, we feel more comfort knowing that a seizure rescue...Reactions0reactionsComments0 comments
