MRI AnxietyMedication used to be my least favorite part of my seizure care plan. However, over the past couple of years, my perspective shifted, and medical imaging took precedence. But despite...reactionscomments
Weaning Off Of Phenobarbital Again – The Right WayA few years ago (in 2018), I tried to get off of phenobarbital with another doctor. However, it was a frightening experience for me and my family. My doctor at...reactionscomments
Do Flashing Holiday Light Displays Bother You?It's estimated that only 3-5% of people or persons with epilepsy may have a seizure or other health complications due to flashing lights, strobe lights, pyrotechnics etc., it all depends...reactions5comments
How Computer Screens Affect My SeizuresIn the nearly 60 years that I've had epilepsy, I've been able to identify a lot of triggers. But besides the usual – i.e., being negligent in taking my medicine...reactions4comments
Is a Vagus Nerve Stimulator (VNS) for Me?After half a century on medications to control my epilepsy, I've had enough "cocktails" to stump a bartender! Haha! Kidding aside, no mixture of medications or juggling the amounts or...reactions4comments
Ask Questions, Learn More, Express YourselfIt is always good to learn about the conditions you're living with in depth to know about yourself and potenial treatment options. Since I was 6 years old, I've been...reactionscomments
Traumatic Brain Injury Caused My EpilepsyMy Name is Timmothy Cronen, and I am lucky enough to be here to explain my story to you all. I was in a horrible car accident in 1997 where...reactions3comments
Choosing the Best Epilepsy Doctor for YouAre you looking for an epileptologist? Or are you not satisfied with the neurologist you are seeing? What kind of attitude are you looking for in your doctor? A doctor...reactionscomments
From Pink to Purple Ribbons, We Need ActionNovember is designated as Epilepsy Awareness Month. After just finishing up advocacy during Breast Cancer Awareness Month, I am a bit fatigued. I am a stage III breast cancer survivor and...reactionscomments
An Urge for an Ordinary DayBeing the parent to a young adult (23 years old) is tricky. He wants independence, to be like his friends, to not be scared to leave his house for fear...reactionscomments
How Can I Support a Friend or Family Member With Epilepsy This November?November is Epilepsy Awareness Month, and if you know someone living with epilepsy, this article will give you some practical ways to support a friend or family member living with...reactions1comment
Resilience: A Defining Theme of EpilepsyI am always learning, relearning, applying, and reapplying what I learn. When you're living with epilepsy, this is a must! With November being Epilepsy Awareness Month, I've been reflecting on...reactionscomments
Understanding Photosensitive EpilepsyYou may wonder why I ask you to help raise awareness when you or your loved one might not have epilepsy, well at one point my daughter Melody didn't either...reactions4comments
Treating Epilepsy: Risks, Side Effects, But Still No CureLiving with epilepsy can be unpredictable and challenging. When I've explained my medical journey to those who ask – when speaking about my medication or viewing my surgery scars –...reactions2comments
Menopause, Epilepsy and Family RelationshipsI’m Michele, from Newcastle upon Tyne, UK. I’m a 62 year old woman, divorced from an abusive alcoholic. I’ve had TLE since I was 11, stress and ovulation are/were my...reactions3comments
Working Through My Fears of SUDEPOne of the many uncertainties of epilepsy that always lingers in the back of my mind is the fear of sudden unexpected death in epilepsy (SUDEP). This unexpected possibility brings...reactionscomments
Achieving My Dreams While Living With EpilepsyA new friend of mine who doesn't have epilepsy but reads my columns replied, "Boy, you've really done a lot of things with epilepsy!" He went further and said that...reactionscomments
Spreading Epilepsy Awareness in "Non-Epilepsy" SpacesFor this year's Essence Festival of the Culture, I was able to have my first vendor booth for my epilepsy nonprofit, the Saving Grace Epilepsy Foundation. The Essence Festival is...reactionscomments
Myths About Epilepsy vs. Facts About EpilepsyOver the years, I've learned that advocating for epilepsy is crucial to finding a cure. When I was younger, I didn't realize there were so many misconceptions about seizure disorders...reactions3comments
Marijuana to Treat Epilepsy?Do you really want to be put on Charlotte's Web (cannabidiol/CBD), Epidiolex, or medical marijuana and wonder if a doctor with more expertise in epilepsy/seizures might not recommend it? I...reactions2comments
