Riding Rollercoasters With EpilepsyWhen you're an adventurous child filled with imagination and delight, amusement parks can be some of your best childhood memories. For me, it always started with the excitement that came...reactionscomments
We Had Never Heard of Dravet Syndrome – Until His DiagnosisThe first time I Googled "Dravet syndrome" was the day we got our diagnosis for our son Will – the first time I had ever heard "Druh-vay." The very first...reactionscomments
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate dance between hope and uncertainty. Recently, I made...reactionscomments
Trigger Truths: Tell Us About Your Seizure TriggersAre there certain situations that lead to your seizures? We call these seizure triggers. And the truth is, they're different for everyone. Of course, skipping doses of epilepsy meds is...reactionscomments
Swimming With EpilepsyDo you like to swim? I sure do. But even as an adult going for a splash, I know it's important to have someone else present when I'm in the...reactions2comments
Experiencing a Seizure Caused by a Medical TestI had to go in for some pulmonary testing, which included the pulmonary function test. This test requires you to do 4 different breathing exercises, some of which include a...reactionscomments
Staying Calm and Managing Anxiety During a Hospital StayI had always been afraid of hospitals. The smell of disinfectant, the sterile environment, the unknown — it all made my heart race and my palms sweat. Could my fear...reactionscomments
"But You Don't Look Sick?" And Other Questions I Get About My EpilepsyWhen I first began to go to a specific bar in Queens, New York, I did not drink alcohol because it is dangerous with AED medications and should be avoided...reactionscomments
Understanding Epilepsy Treatment and If Surgery Is an OptionA few years ago, I went to the doctor to see if I qualified for epilepsy surgery. I stayed in the hospital over 2 weeks. I did not qualify because...reactionscomments
How Sleep Can Impact SeizuresWe have all heard how getting enough sleep is a crucial aspect of overall health. Getting the proper amount of sleep each night is important not only for your physical health...reactionscomments
Our Child Has a Dravet Syndrome... How Does It Affect His Siblings?When I was pregnant with Will, my second baby and Dravet child, I had their whole lives pictured in my head. I was an only child and was so excited...reactionscomments
Finding the Right Medication CombinationHaving side effects with any medication is inevitable unless you luck out. However, my medications really didn't start to give me any issues, per se. It was the long-term side...reactionscomments
What Are Your Seizure Triggers?When first diagnosed with epilepsy, we can't understand everything all at once – particularly what all of our seizure triggers might be. How can people figure out what triggers their...reactions2comments
Awakening Awareness About SUDEPWhen a neurologist told my parents in 1970 that I was epileptic, he assured them it was nothing to be concerned about, despite the fact he was prescribing a strong...reactionscomments
Mobility Aids: If You Need It, Use It!It has been about 3 years since mobility aides were introduced into my life, and let me tell you, it was no easy feat. I did not want to need...reactionscomments
Stress, Anxiety, and EpilepsyStress, anxiety, and epilepsy are quite related in my life. But maybe this is all new for someone who never thought anxiety could trigger epilepsy. Learning about triggers can be...reactions3comments
From Healthy to Dravet2017 was one of the best years of my life. My husband came back from a deployment just in time for our son's 2nd birthday. We moved from South Carolina...reactionscomments
My Autoimmune Disorder: Is It Connected to Epilepsy?Let's rewind to 2018 when I found myself dealing with some thyroid troubles. At first, it all seemed pretty straightforward – my bloodwork showed irregularities, and the first endocrinologist I...reactions2comments
Always Be Honest With Your DoctorIt is hard to face certain things concerning epilepsy. One of epilepsy's biggest challenges? Medication. Every medication has a different effect on every person. What controls seizures for one person...reactionscomments
Empowering Law Enforcement With Seizure Safety TrainingEmbarking on a transformative journey with the Epilepsy Foundation of America and the Public Health Institute in Atlanta, my mission was clear: to enhance seizure safety awareness within law enforcement...reactions2comments
