Ask the Advocates: Your Epilepsy Treatment JourneyTreating epilepsy is not an exact science. For each individual patient, what works and what doesn't work will vary. An anti-seizure drug...reactionscomments
Our Child Has Dravet Syndrome... How Does It Affect His Siblings?When I was pregnant with Will, my second baby and Dravet child, I had their whole lives pictured in my head. I...reactions1comment
Getting to Know Our CommunityIt's so important to us to get to know our community's needs, and what types of information or connection people are here...reactionscomments
The Pivotal Moment I Realized My Purpose for Having EpilepsyI'd experienced all of epilepsy's weapons for nearly 40 years – lost jobs, car wrecks, humiliating pharmaceutical side effects, broken romances. But...reactionscomments
Being a Single Man and Dating with EpilepsyMany people worried about what epilepsy will do to loving relationships, but I think the majority are very genuine with the marital...reactions2comments
Suffering, Perseverance, and HopeMathematics was my worst subject in school, but let me show you what appears to be a cool algebra formula for life:...reactions1comment
Achieving My Dreams While Living With EpilepsyA new friend of mine who doesn't have epilepsy but reads my columns replied, "Boy, you've really done a lot of things...reactionscomments
Weather, Storms, and the Effect on EpilepsyFor the most part, I've always loved thunderstorms. Growing up in Minnesota, we would get some truly gorgeous storms. Arizona's monsoon season...reactions1comment
Trigger Truths: Tell Us About Your Seizure TriggersAre there certain situations that lead to your seizures? We call these seizure triggers. And the truth is, they're different for everyone...reactionscomments
Self-Care is Seizure PreventionSelf-care is incredibly important for people living with epilepsy, so I want everyone to have as many ideas as possible. Every couple...reactions3comments
What Is the "Postictal State" of a Seizure?I want to share some information about the postictal state of a seizure. What does this mean? You all always ask excellent...reactions8comments
What an Epileptic Seizure *Really* Feels Like: My Personal Story"What does it feel like to have an epileptic seizure?" People have asked me that and I've returned them glances probably like...reactions23comments
We Had Never Heard of Dravet Syndrome – Until His DiagnosisThe first time I Googled "Dravet syndrome" was the day we got our diagnosis for our son Will – the first time...reactionscomments
Epilepsy Awareness & the Power of Shared SupportNovember is Epilepsy Awareness Month. This month is an important reminder for me of the 3.4 million people across America who are...reactions2comments
The Emotional Toll of EpilepsyThe burden of epilepsy is that it follows you wherever you go. Before my brain surgery, it started the moment I woke...reactions13comments
Becoming a Surgery CandidateThe idea seemed so far-flung at first. Brain surgery? What exactly do the surgeons remove? After repeated seizures during my video EEG...reactions3comments
Why Are Seizures Scary?My first seizure jolted all 3 of my college roommates out of bed. Yelling, blood, and convulsions shocked and scared them because...reactions5comments
How Sleep Can Impact SeizuresWe have all heard how getting enough sleep is a crucial aspect of overall health. Getting the proper amount of sleep each night...reactionscomments
Why Stress Can Be a Seizure TriggerIf you have seizures, you know there can be many triggers. Triggers are things that can cause you to have a seizure...reactions14comments
How Computer Screens Affect My SeizuresIn the nearly 60 years that I've had epilepsy, I've been able to identify a lot of triggers. But besides the usual...reactions4comments
