Uncontrolled SeizuresI am a young adult who is mentally and physically disabled. I have many challenges with my daily life. My speech and...reactionscomments
Empowering the Epileptic Journey: Navigating Work and Transportation ChallengesHey fabulous souls, it's Derra Howard, your guide in the world of style and resilience. Today, let's dive into a topic that's...reactionscomments
I'm a Mom With Epilepsy – Here Are My TipsMotherhood and epilepsy... Y'all, it has been a wild ride! I have made it more than a year into this world of motherhood, how...reactionscomments
Debilitating Medication Side Effects: Chronic NauseaNavigating the delicate balance between health and medication side effects is an ongoing challenge, one faced daily by many individuals with chronic...reactionscomments
Putting On My "I'm Fine" Face With EpilepsyIs it normal to say "I'm fine" when you're clearly not? Or perhaps it's easier than explaining your situation to those around...reactions1comment
Riding Roller Coasters with EpilepsyWhen you're an adventurous child filled with imagination and delight, amusement parks can be some of your best childhood memories. For me...reactions1comment
We Had Never Heard of Dravet Syndrome – Until His DiagnosisThe first time I Googled "Dravet syndrome" was the day we got our diagnosis for our son Will – the first time...reactionscomments
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate...reactionscomments
Trigger Truths: Tell Us About Your Seizure TriggersAre there certain situations that lead to your seizures? We call these seizure triggers. And the truth is, they're different for everyone...reactionscomments
Swimming With EpilepsyDo you like to swim? I sure do. But even as an adult going for a splash, I know it's important to...reactions2comments
Experiencing a Seizure Caused by a Medical TestI had to go in for some pulmonary testing, which included the pulmonary function test. This test requires you to do 4...reactionscomments
Staying Calm and Managing Anxiety During a Hospital StayI had always been afraid of hospitals. The smell of disinfectant, the sterile environment, the unknown — it all made my heart...reactionscomments
"But You Don't Look Sick?" And Other Questions I Get About My EpilepsyWhen I first began to go to a specific bar in Queens, New York, I did not drink alcohol because it is...reactionscomments
Understanding Epilepsy Treatment and If Surgery Is an OptionA few years ago, I went to the doctor to see if I qualified for epilepsy surgery. I stayed in the hospital...reactionscomments
How Sleep Can Impact SeizuresWe have all heard how getting enough sleep is a crucial aspect of overall health. Getting the proper amount of sleep each night...reactionscomments
Our Child Has a Dravet Syndrome... How Does It Affect His Siblings?When I was pregnant with Will, my second baby and Dravet child, I had their whole lives pictured in my head. I...reactions1comment
Finding the Right Medication CombinationHaving side effects with any medication is inevitable unless you luck out. However, my medications really didn't start to give me any...reactionscomments
What Are Your Seizure Triggers?When first diagnosed with epilepsy, we can't understand everything all at once – particularly what all of our seizure triggers might be...reactions2comments
Awakening Awareness About SUDEPWhen a neurologist told my parents in 1970 that I was epileptic, he assured them it was nothing to be concerned about...reactionscomments
Mobility Aids: If You Need It, Use It!It has been about 3 years since mobility aides were introduced into my life, and let me tell you, it was no...reactionscomments
