The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...reactionscomments
Are There Any Foods People With Epilepsy Should Avoid?Food brings people together. We eat with our loved ones to celebrate milestones or just to catch up. But if you live with seizures due to epilepsy, are there certain...reactions10comments
Living With an Invisible IllnessI am what many would call a statistic. Many of you, your friends, and your loved ones are too. What category am I referring to? The category that wasn't of...reactions3comments
Averys Fight With Glycine encephalopathy (GCE)/ Nonketotic hyperglycinemiaAvery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due to a defect in her GLDC gene in...reactions1comment
Childhood Absence Epilepsy: Will My Daughter Inherit It From Me?I have written previously about my seizure disorder and how I have absence seizures. One of my greatest hopes it that my children will not inherit this condition from me...reactions2comments
Dating With Epilepsy: 3 Ways to Navigate Dating When Your Seizures Are ActiveDating is a task within itself. I had been seizure-free for 3 years, up until recently. To be honest, epilepsy has been my little dark secret. The thing that I...reactions1comment
Is Epilepsy a Disease or Disorder?When I was first diagnosed with epilepsy in 2010, I just assumed epilepsy was a disease. Like cancer or heart disease, it can impact anyone and has multiple causes. But...reactions5comments
Become an EpilepsyDisease.com Patient LeaderUpdate: The application is now closed. Would you like to share your experience with epilepsy and help others who are also living with the condition? Whether you live with epilepsy...reactionscomments
Sleepless Brain, Sleepless NightsHaving epilepsy, it is so important that we listen to our bodies and ensure that we are getting enough rest. Easier said than done – without a doubt for many...reactionscomments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year of failed medications and failed brain surgeries. "Why...reactionscomments
Ask the Advocates: What Has Epilepsy Taught You?No epilepsy journey is the same. Its ups and downs, its challenges and obstacles – epilepsy can take its toll. But like all of life's hardest parts, it also can...reactionscomments
10 Things You Need To Know About EpilepsyEpilepsy is often overlooked and not talked about. Yet, it is a very common disorder around the world. First things first, what is epilepsy? It's a disorder that causes seizures...reactionscomments
Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of anti-seizure drugs, being easily accessible for questions, or...reactionscomments
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could be. He hit all his milestones as any...reactionscomments
Ask Real Patients: Is Epilepsy Misunderstood?For those living with epilepsy, it can feel like others just don't get it. Seizures, medications, side effects, anxiety, stigma... Epilepsy can affect so many aspects of everyday life. Managing...reactionscomments
Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when the feeling of guilt starts to creep in...reactionscomments
Fear of the Next SeizureEpilepsy is unpredictable. Knowing if or when the next seizure will strike can cause immense stress and anxiety. These feelings can weigh heavy on someone living with a seizure disorder...reactions8comments
Ask the Advocates: Your Epilepsy Treatment JourneyTreating epilepsy is not an exact science. For each individual patient, what works and what doesn't work will vary. An anti-seizure drug that works for one person may not work...reactionscomments
My Son's Epilepsy Diagnosis: Now What?I can remember sitting in the neurologist's office hearing that my son, Matthew, has epilepsy. The day was October 31, 2008, 2 days away from his 6th birthday. It was...reactionscomments
Ask the Advocates: Who Has Supported Your Epilepsy Journey?Epilepsy is hard. Period. Whether it's navigating medication options, enduring daily side effects, fearing the next seizure, or facing judgments and stigma – people living with epilepsy can have a...reactionscomments