The School of EpilepsyAs a 33-year-old, I have learned a lot of lessons in my life. Sometimes from kind mentors and sometimes by life events...reactions7comments
Uphill Both Ways: Transportation Challenges With EpilepsyDriving is such an essential part of most – but not all – people's lives. What if you can't drive? Every state...reactions7comments
Mental Health and Living With Epilepsy in MalaysiaBefore we discuss mental health and epilepsy, let me talk a bit about where I am from. Malaysia is where I live...reactions1comment
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Are There Any Foods People With Epilepsy Should Avoid?Food brings people together. We eat with our loved ones to celebrate milestones or just to catch up. But if you live...reactions10comments
Living With an Invisible IllnessI am what many would call a statistic. Many of you, your friends, and your loved ones are too. What category am...reactions3comments
Averys Fight With Glycine encephalopathy (GCE)/ Nonketotic hyperglycinemiaAvery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due...reactions1comment
Childhood Absence Epilepsy: Will My Daughter Inherit It From Me?I have written previously about my seizure disorder and how I have absence seizures. One of my greatest hopes it that my...reactions2comments
Dating With Epilepsy: 3 Ways to Navigate Dating When Your Seizures Are ActiveDating is a task within itself. I had been seizure-free for 3 years, up until recently. To be honest, epilepsy has been...reactions1comment
Is Epilepsy a Disease or Disorder?When I was first diagnosed with epilepsy in 2010, I just assumed epilepsy was a disease. Like cancer or heart disease, it...reactions5comments
Become an EpilepsyDisease.com Patient LeaderUpdate: The application is now closed. Would you like to share your experience with epilepsy and help others who are also living...reactionscomments
Sleepless Brain, Sleepless NightsHaving epilepsy, it is so important that we listen to our bodies and ensure that we are getting enough rest. Easier said...reactions2comments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year...reactionscomments
Ask the Advocates: What Has Epilepsy Taught You?No epilepsy journey is the same. Its ups and downs, its challenges and obstacles – epilepsy can take its toll. But like...reactionscomments
10 Things You Need To Know About EpilepsyEpilepsy is often overlooked and not talked about. Yet, it is a very common disorder around the world. First things first, what...reactionscomments
Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of...reactionscomments
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could...reactions2comments
Ask Real Patients: Is Epilepsy Misunderstood?For those living with epilepsy, it can feel like others just don't get it. Seizures, medications, side effects, anxiety, stigma... Epilepsy can...reactionscomments
Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when...reactionscomments
Fear of the Next SeizureEpilepsy is unpredictable. Knowing if or when the next seizure will strike can cause immense stress and anxiety. These feelings can weigh...reactions10comments
