Epilepsy and Migraines: A Pain in the HeadA quiet and dark room, cold compress, Ibuprofen, and Tylenol... Oh, migraine we meet again! At times I've had some truly debilitating hours thanks to my migraines. I've used icepacks...Reactions0reactionsComments0 comments
Epilepsy Support Groups Give Us Superhero StrengthEven superheroes with amazing powers find enemies who are too overpowering to fight by themselves, but they're not too proud to team up. I was literally on the edge of...Reactions0reactionsComments0 comments
Worthy of WorkIf somebody is experiencing active, ongoing seizures then it can be hard to maintain a working position. Even when somebody's epilepsy is considered managed by medication, it can still be...Reactions0reactionsComments5 comments
Epilepsy & My IdentityA person's identity is so important. Oxford Learner's Dictionary defines "identity" in three ways. Until a couple of years ago, my identity was, "I am an epileptic person." Many amazing...Reactions0reactionsComments0 comments
How Does Epilepsy Affect My Daily Life?Every area of a person's life and daily experiences are impacted by epilepsy. This neurological disease called epilepsy causes unpredictable episodes that could be of any severity. It can have...Reactions0reactionsComments3 comments
Little Seizures, Big Consequences: Recognizing Signs of Infantile SpasmsPrior to August 2020, I knew very little about epilepsy. What I did know came from movies and TV shows. I pictured full-body shaking, eyes rolling back, grand mal seizures...Reactions0reactionsComments0 comments
Why to Bring a Friend to Your Neurologist AppointmentsThis is advice I have for every doctor appointment. Specialists are not an exception to this rule. Bring a second person. There are many reasons that a second individual can...Reactions0reactionsComments2 comments
Tips for Traveling with Epilepsy"Pssss. YOU. I'm wantin' to break out of Epilepsy Prison tonight. Nice vacation... Wanna come? Here are some things you need to do..." Over 5 decades with epilepsy, I've picked...Reactions0reactionsComments0 comments
My Experience With BriviactI feel confident in talking about my newest medication. I have now been on it for 366 days. (I want to make sure that my review came after a whole...Reactions0reactionsComments3 comments
My First Seizure in 3 Years... And Accepting I Can't Control EpilepsyEpilepsy has been a part of my life since the age of 9 years old. Unfortunately, I often didn't know how to feel when a seizure would occur. It left me feeling...Reactions0reactionsComments14 comments
The School of EpilepsyAs a 33-year-old, I have learned a lot of lessons in my life. Sometimes from kind mentors and sometimes by life events. I have also had the occasional unsolicited lessons...Reactions0reactionsComments7 comments
Uphill Both Ways: Transportation Challenges With EpilepsyDriving is such an essential part of most – but not all – people's lives. What if you can't drive? Every state has a time span that a person who...Reactions0reactionsComments7 comments
Mental Health and Living With Epilepsy in MalaysiaBefore we discuss mental health and epilepsy, let me talk a bit about where I am from. Malaysia is where I live and have experienced what it's like to be...Reactions0reactionsComments1 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Are There Any Foods People With Epilepsy Should Avoid?Food brings people together. We eat with our loved ones to celebrate milestones or just to catch up. But if you live with seizures due to epilepsy, are there certain...Reactions0reactionsComments8 comments
Living With an Invisible IllnessI am what many would call a statistic. Many of you, your friends, and your loved ones are too. What category am I referring to? The category that wasn't of...Reactions0reactionsComments2 comments
Averys Fight With Glycine encephalopathy (GCE)/ Nonketotic hyperglycinemiaAvery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due to a defect in her GLDC gene in...Reactions0reactionsComments1 comments
Childhood Absence Epilepsy: Will My Daughter Inherit It From Me?I have written previously about my seizure disorder and how I have absence seizures. One of my greatest hopes it that my children will not inherit this condition from me...Reactions0reactionsComments2 comments
Dating With Epilepsy: 3 Ways to Navigate Dating When Your Seizures Are ActiveDating is a task within itself. I had been seizure-free for 3 years, up until recently. To be honest, epilepsy has been my little dark secret. The thing that I...Reactions0reactionsComments1 comments
Is Epilepsy a Disease or Disorder?When I was first diagnosed with epilepsy in 2010, I just assumed epilepsy was a disease. Like cancer or heart disease, it can impact anyone and has multiple causes. But...Reactions0reactionsComments6 comments