Writing a Memoir: Digging up Memories“I’m pleased to report that I presented your proposal to our faculty committee and the project has been approved for a full contract.” A huge smile spread across my face...reactions2comments
Where Did the Spoon in Mouth Myth During a Seizure Come From?Where did the spoon-in-mouth myth during a seizure come from? I always wondered where it came from. So I looked it up. In medial writings from the 19th Century, people...reactionscomments
Our History and the Future For UsDo you ever feel alone or different, having limitations because of epilepsy? In real life, all people have a limitation of something that they are unable to do or not...reactions4comments
Back In The Driver's Seat“Change lanes, Tim. We’re exiting right,” my driving teacher instructed. We were in the center of five eastbound expressway lanes. “WATCH YOUR BLIND SPOTS.” Her stronger tone irritated me, though...reactions1comment
Living with Epilepsy: My Journey of ResilienceEpilepsy is more than a medical condition. It tests your limits, reshapes your priorities, and ultimately teaches resilience. You become adaptable. My journey with epilepsy has been a journey marked...reactions13comments
Avoiding Seizures with Progressive Relaxation?In the mid-1990s, my seizures were at least weekly, which met the criteria of my epileptologist’s research from Southern Illinois University’s Medical School. Having already impressed him with the thoroughness...reactionscomments
Does Fever Trigger Epilepsy?Does fever trigger epilepsy? It’s an unfortunate reality I’ve come to know all too well. This wasn’t always the case. For most of my life, fever and epilepsy weren’t connected...reactionscomments
A Successful Medication Change: Titrating Off Phenobarbital PausedAfter a year and five months of weaning off phenobarbital, I stopped the process. I stopped the process because I needed some normalcy again. I’m not sure if it was...reactions4comments
Can You Have a Relationship When You Have Epilepsy?"Is having a relationship while having epilepsy possible?" This question has haunted me ever since I was a child. I was diagnosed with epilepsy at ten years old, and back...reactions7comments
Experiencing LossesThere are many types of losses: friends or family moving away, someone passing away, a relationship ending, missing school due to hospitalization, or losing people due to different opinions about...reactions1comment
The Burdens We Carry Giveaway**The giveaway is now closed. Thank you for participating!** November is Epilepsy Awareness Month! In recognition of this important time of year, we invite you to reflect on the theme...reactions1comment
My Journey to Medical Marijuana: A Search for ReliefLiving with epilepsy can be complex at time. I have been looking for the perfect medication combination for a year now. I have tried several medications, but it truly has...reactions3comments
Being There for YourselfThere is a person I made friends with when we were both staying in the pediatric part of the hospital. He was eight, and I was ten, so there wasn’t...reactions3comments
My Last DanceI’ll always remember the last dance I had with my wife at a time when many would have identified us as “newlyweds.” It’s haunting because of a classic Keppra mood...reactions1comment
New Medication, But I Feel BlahIt's been a year on this journey of finding the right medication to replace phenobarbital. I won't lie. It has been challenging. I have dealt with a range of challenges...reactions1comment
Side-Effects of MedicationsEditor’s note: This article addresses the topics of suicide and self-harm. If you or someone you care about is experiencing suicidal thoughts, please reach out to the crisis lifeline by...reactionscomments
The Sleepless Nights of EpilepsySleep, a fundamental human need, has become an elusive luxury for me. Ever since my epilepsy began to worsen, I've found myself battling a constant fear of slumber. The mere...reactions6comments
Bridging the Gap: My Journey as an Epilepsy Nonprofit OwnerLife as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my resources and network together for a good cause:...reactions2comments
What College is Right For You?The preparatory school that that I attended as a teen was a high school that I found while searching for a high school for students with disabilities. My neurosurgeon had...reactions1comment
Community Pulse: Epilepsy in the MediaThe way epilepsy is shown in the media can have a big impact on how people understand the condition. Unfortunately, portrayals can sometimes spread misinformation or overlook the real experiences...reactionscomments