A Successful Medication Change: Titrating Off Phenobarbital PausedAfter a year and five months of weaning off phenobarbital, I stopped the process. I stopped the process because I needed some normalcy again. I’m not sure if it was...Reactions0reactionsComments1 comments
Can You Have a Relationship When You Have Epilepsy?"Is having a relationship while having epilepsy possible?" This question has haunted me ever since I was a child. I was diagnosed with epilepsy at ten years old, and back...Reactions0reactionsComments5 comments
Experiencing LossesThere are many types of losses: friends or family moving away, someone passing away, a relationship ending, missing school due to hospitalization, or losing people due to different opinions about...Reactions0reactionsComments1 comments
The Burdens We Carry Giveaway**The giveaway is now closed. Thank you for participating!** November is Epilepsy Awareness Month! In recognition of this important time of year, we invite you to reflect on the theme...Reactions0reactionsComments1 comments
My Journey to Medical Marijuana: A Search for ReliefLiving with epilepsy can be complex at time. I have been looking for the perfect medication combination for a year now. I have tried several medications, but it truly has...Reactions0reactionsComments3 comments
Being There for YourselfThere is a person I made friends with when we were both staying in the pediatric part of the hospital. He was eight, and I was ten, so there wasn’t...Reactions0reactionsComments0 comments
My Last DanceI’ll always remember the last dance I had with my wife at a time when many would have identified us as “newlyweds.” It’s haunting because of a classic Keppra mood...Reactions0reactionsComments0 comments
New Medication, But I Feel BlahIt's been a year on this journey of finding the right medication to replace phenobarbital. I won't lie. It has been challenging. I have dealt with a range of challenges...Reactions0reactionsComments1 comments
Side-Effects of MedicationsEditor’s note: This article addresses the topics of suicide and self-harm. If you or someone you care about is experiencing suicidal thoughts, please reach out to the crisis lifeline by...Reactions0reactionsComments0 comments
The Sleepless Nights of EpilepsySleep, a fundamental human need, has become an elusive luxury for me. Ever since my epilepsy began to worsen, I've found myself battling a constant fear of slumber. The mere...Reactions0reactionsComments6 comments
Bridging the Gap: My Journey as an Epilepsy Nonprofit OwnerLife as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my resources and network together for a good cause:...Reactions0reactionsComments2 comments
What College is Right For You?The preparatory school that that I attended as a teen was a high school that I found while searching for a high school for students with disabilities. My neurosurgeon had...Reactions0reactionsComments1 comments
Community Pulse: Epilepsy in the MediaThe way epilepsy is shown in the media can have a big impact on how people understand the condition. Unfortunately, portrayals can sometimes spread misinformation or overlook the real experiences...Reactions0reactionsComments0 comments
Other Medications’ Impact on the Effectiveness of Seizure MedsI’ve shared about the challenges that can arise from medication side effects. There is another side to medication side effects than how they impact your own body. Currently, I’m facing...Reactions0reactionsComments7 comments
When I Reach My Ceiling, Seizures BeginMy seizures are triggered in various ways. Like most people with epilepsy, we learn our triggers over time. I’ve learned my seizure triggers are lack of sleep, drinking, stress, and...Reactions0reactionsComments0 comments
Preparing for Back to School With EpilepsyAs the back-to-school season approaches, it's essential to address how adult students with epilepsy, particularly those who are nonverbal, and their caregivers can prepare for a successful academic year. Managing...Reactions0reactionsComments2 comments
5 Things You Should Know Before Switching Epilepsy MedicationEditor's Note: Always consult your doctor before making any changes to your medication or treatment plan. Living with epilepsy means navigating the world of medication to find what works best...Reactions0reactionsComments1 comments
Learn About Epilepsy, Live Happy, and Carry OnDo you not fully understand epilepsy and seizures? If newly or not newly diagnosed, it is great to read books such as "Information About Epilepsy" and go to lectures in...Reactions0reactionsComments1 comments
How My Epilepsy Medication Has Made Me TiredI want to talk about the changes that happened to my body after surgery, especially for my epilepsy and the tiredness felt by my body after taking my epilepsy medication...Reactions0reactionsComments1 comments
Navigating the Prior Authorization MazeWhile intended to ensure appropriate and cost-effective care, prior authorizations often create significant barriers to patients and caregivers. This can impede timely access to necessary medical interventions, like anti-seizure medications...Reactions0reactionsComments1 comments