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Read conversations, start a discussion, and connect with others about epilepsy.

Epileptic since I was born

I am almost 19 years old and I have been epileptic my whole life, but I got diagnosed with eye fluttering seizures when I was about 12-13yo. I have had...

Hello! My Name is Diana Berg

Diagnosed when I was 9 started out with just seizures in my sleep when I got older I got the grand mal ones even though I seizures I have 2...

My story isn't over

I have been epilepsy warrior since I was 6 months old. The last time I have had a seizure has been since May 2022 had multiple seizures. I have been...

It’s hard

I was diagnosed with epilepsy at the age of 14. I had to get birth control when I got diagnosed. In addition, my headache got so bad, I never feel...

Everyday is a better day!

I was born with epilepsy when I was a few weeks old, it went away for 9 years came back the summer of 2010 and had 2 brain surgeries one...

Featured

Living with epilepsy

Living with epilepsy can be challenging. How do you deal with epilepsy? Tell us about your experience....

My First Seizure Story

First time I experienced a seizure I was on back of motorcycle when I fell off of it. I went to the hospital and was placed on life support. This...

Epilepsy Labels: Is It a Disease, Disorder, or Condition?

We understand that names and labels matter! Despite their intent to inform, labels sometimes feel stigmatizing. As part of our effort to support people living with epilepsy and those who...

Coping

How do you cope with epilepsy?...

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