What about NON Epileptic Seizures?

Even though they started 2.5 years ago, it’s been a very long difficult journey.. never met someone that has been through similar experiences. all the same Drs visits and results. Although I’ve only been battling for 2.5 years, it’s been a very long difficult journey.

Never had seizures my entire life until Feb 5, 2023. I don’t know what caused it but it was so bad I stopped breathing on the way to the hospital, that my husband called 911. And they told him to pull over at a gas station to wait for Ambo/EMS to come get me. They had him pull me from the car to lay on the ground in the rain doing chest compressions.

Almost any Dr that sees it happen says I have epileptic seizures. The Drs did all the tests, including the mobile EEG for 72 hours. Even though I had seizures while wearing it, nothing showed on the report.

So my neuro says these are NON-EPILEPSY seizures and cannot be controlled. She’s basically washing her hands of me.
She told me not to drive, which I strictly didn’t. And told me group therapy would be my best option.
I’m sorry but I’ve done CBT, private therapy, ECT and everything else under the sun but it doesn’t work.

Then she says well since they are non epileptic I suppose you can start driving again.

My first solo drive was to Costco to pick up my meds. While there, I got really stressed and overwhelmed and had a Grand Mal on the floor of Costco and my hubby had to come get me.

So now my father in law says I cannot drive at all. That is the most frustrating thing yet. Besides the humiliation of everything else.

I have severe back issues and can barely walk or even get out of bed. And I just recently had my 4th major reconstructive surgery on my hand so I’m basically one handed at this point and it hurts so bad.

Plus my overgrown 16 month puppy destroys me. I used to be a dog trainer for 20 years, but somehow he thinks he owns me. Has knocked me down really bad, so many times I fall bc of him. And he bites me or tears apart the clothes am currently wearing trying to lead me places. He just needs to get thru this stage and he will be a great service dog. Several times he has stared at me strangely then knock me back in bed and then sit on top of me and 1 minute later I was having full blown seizure. He’s very smart…

It is so difficult to do my ADL im so grateful for my terrific husband and his parents who have become my parents bc I don’t have any.

Sorry I think I rambled. Just having someone out there who understands is amazing!

So pls respond or text with any questions or suggestions as much as possible!
Thank you all for reading my story.